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Please Give me Advice.... Just had a seizure
Fri, 09/06/2013 - 10:14
Hey guys,
I'm here because I seriously have no clue what to do and I just completely feel alone. Sitting here balling my eyes out out of complete fear.
I'm a 19 year old guy. I have Juvenile Myoclonic Epilepsy. I've had seizures since I was born. Ever since 2008, they slowed down tremendously. (JME is a very mild form of epilepsy).
My last seizure was about a year ago, and judging by how badly my tongue was torn to pieces, it was a pretty serious one. Whenever I have a seizure, it's always grand mal. And it's pretty bad. I had it at about 2 am, and I fell through a wall.
Anyways, I think I just had another seizure. I woke up around 7 with mild twitches and just fell back asleep. I just woke up on the ground in a pool of blood. My body doesn't hurt, but I bit my tongue and I'm 99% sure I just had one.
I took my medication this morning, and I've been drinking water and trying to eat. Here's the thing; I pretty much live on my own. I'm seriously opposed to telling my doctor that I had another seizure. I'm terrified. He said he would take away my license if I had another one. I'm very independant. My license is my LIFELINE. I can't tell my parents or friends because they'll flip out and honestly I don't want to put my mother through that..
What should I do? I don't know I guess I just want to talk to/hear from people. This is the absolute worst feeling in the world. I wouldn't wish it on my worst enemy.
Comments
Re: Please Give me Advice.... Just had a seizure
Submitted by song on Sat, 2013-09-07 - 01:59
Hello, I just saw your story, very sorry to hear that. what kind of medicine you take? only one medicine or medicine combination? some seizure need few medicine work together, this is very commen in seizure controling, once you take medicine dont forgot , take everyday, to keep medicine level balance in blood, this will help stop seizure,,,
some patients can control seizure for few years , then began to less medicine, not suddenly stop, need step by step . suddenly stop medicine can cause constant seizure ,very dangerous,..
also dont stay very late, get enough sleep, everytime after seizure ,the brain lack of oxygen , feel sleepy, enough sleep is best way to help,,
would you mind tell me which medicine you take? in fact there over 60 type of epilepsy , they use different medicine ..
hope this will help you ,,,,before i work in epilepsy hospital for 10years, i can help you consule our experter , he devote his whole life in epilepsy field,,
god bless you
linda
Hello, I just saw your story, very sorry to hear that. what kind of medicine you take? only one medicine or medicine combination? some seizure need few medicine work together, this is very commen in seizure controling, once you take medicine dont forgot , take everyday, to keep medicine level balance in blood, this will help stop seizure,,,
some patients can control seizure for few years , then began to less medicine, not suddenly stop, need step by step . suddenly stop medicine can cause constant seizure ,very dangerous,..
also dont stay very late, get enough sleep, everytime after seizure ,the brain lack of oxygen , feel sleepy, enough sleep is best way to help,,
would you mind tell me which medicine you take? in fact there over 60 type of epilepsy , they use different medicine ..
hope this will help you ,,,,before i work in epilepsy hospital for 10years, i can help you consule our experter , he devote his whole life in epilepsy field,,
god bless you
linda
Re: Please Give me Advice.... Just had a seizure
Submitted by idkwhat2do on Sun, 2013-09-08 - 23:20
Thank you SO much for the offer Linda. Wow. That's amazing. You're a great person.
I take 1000mg of Keppra XR every night. I rarely miss a dose. I was actually myoclonic-jerk and seizure free for such a long time that my doctor recommended dropping the dosage in half, but I declined greatly, as tonic-clonic seizures are way too scary to risk having while I'm driving, or anything. I never want to experience one again, although I know the reality may be otherwise..
After I posted this on Friday, I went straight back to bed. I felt a hundred times better when I woke back up. You're right.
Another thing worth noting is how well Keppra XR worked. Before I took Keppra, I had myoclonic jerks EVERY morning, but I never had a seizure until 2008. I actually thought they were completely normal for people to have (I know, weird). I woke myself up every morning for school, so my parents never saw them, until my brother woke me up one weekend, and starting screaming when I started jerking. That's when I was taken straight to the hospital, diagnosed weeks later, and put on Keppra XR. When I do not miss a dose, I experience NOTHING. No jerks, no fatigue, no seizures, nothing. EVERY instance I've had a seizure, I've missed a dose (except for one time, which I think was stress-related).
I refused to take Depakote, because I value my physical health and did not want to put on weight. Keppra XR has been working wonders. It's a bit of a miracle drug for me.
Thanks for your help Linda, and God bless you too.
Thank you SO much for the offer Linda. Wow. That's amazing. You're a great person.
I take 1000mg of Keppra XR every night. I rarely miss a dose. I was actually myoclonic-jerk and seizure free for such a long time that my doctor recommended dropping the dosage in half, but I declined greatly, as tonic-clonic seizures are way too scary to risk having while I'm driving, or anything. I never want to experience one again, although I know the reality may be otherwise..
After I posted this on Friday, I went straight back to bed. I felt a hundred times better when I woke back up. You're right.
Another thing worth noting is how well Keppra XR worked. Before I took Keppra, I had myoclonic jerks EVERY morning, but I never had a seizure until 2008. I actually thought they were completely normal for people to have (I know, weird). I woke myself up every morning for school, so my parents never saw them, until my brother woke me up one weekend, and starting screaming when I started jerking. That's when I was taken straight to the hospital, diagnosed weeks later, and put on Keppra XR. When I do not miss a dose, I experience NOTHING. No jerks, no fatigue, no seizures, nothing. EVERY instance I've had a seizure, I've missed a dose (except for one time, which I think was stress-related).
I refused to take Depakote, because I value my physical health and did not want to put on weight. Keppra XR has been working wonders. It's a bit of a miracle drug for me.
Thanks for your help Linda, and God bless you too.
Re: Please Give me Advice.... Just had a seizure
Submitted by mereloaded on Fri, 2013-09-06 - 15:49
Well said!