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Hi there (UPDATES)
Wed, 08/28/2013 - 09:41Hi there my name is natasha and I have just joined today. I stumbled upon this site whilst researching about my 3 year old daughters symptoms. I think she maybe experiencing absence seizures and mycolonic(sp) seizures also.
We have been to the doctors twice. At first I was concerned about her sleep. From the age of 6 months she has slept through the night maybe 10/15times.....my daughter turns 4 in november. She can wake numerous amounts of times theres no pattern.
Then about 3 months ago I noticed what I was referring to as a twitch. Its the same everytime she does it... her mouth twitches then she shakes her head ( not violently,just like shes saying no).This lasts about 5 seconds or so. This can happen 10/15 times a day....well the ones that I notice.
I explained this to the doctor and she told me to get a video of it so I can show her. I got two videos,one while she was awake and one while she was falling asleep ( its worse when shes falling asleep ). They have referred me to a paediatrician and he also mentioned an eeg. (this was yesterday)
However yesterday I decided to film her sleep. I always knew she moved around and twitch a bit,but never put two and two together. When I was filming her, her hand started twitching, actually it was worse than a twitch. very quickly her hand opened, closed, pointing fingers and so on.
I dont really know what else to say apart from I am interested to know what the process will be so I can kind of prepare my daughter,she was very scared at the doctors appointment and she can be a bit anxious around strangers/doctors, especially since she had her immunistations
All my family keep telling me its just a twitch and it took a video for them to even start questioning it. So ive kinda been feeling alone and frustrated recently.
Should I go back to the doctors about a sleep study or would this be something that the paediatrician will deal with.
Thanks for listening xxx
***UPDATE***
My daughter had her appt yesterday with the ped. I showed her the videos and she also made my daughter hyperventilate which she reacted to. The ped agrees that it is definitely some sort of seizure but we need to pin point what type it is. Doctor mentioned Focal or Generalised which I have learned is either the whole brain or part of the brain...if im right.
Anyway im just glad we are getting somehere if you know what I mean
Re: Hi there
Submitted by rebecca145 on Mon, 2013-09-02 - 15:06
hey,
I understand why your worried about how your daughter will react to the appointments and what she should expect, shes very young and may find the situation scary, i know my baby sister is terrified of all doctors. However, the fact that you will now be dealing with a paediatrician is a great thing, they know how to make little kids feel at ease, hopefully he/she will make the experience fun for her. I know my hospital appointments as a child were much easier than they are now. As far as what to expect, her first appointment will probably not involve an EEG or any major tests, the waiting times are not good but that will give you plenty of time to prepare and maybe practise with her. My first appointment was very basic, with tests like blood pressure and heart rate, they also asked a lot of questions so try and prepare yourself to be as clear and precise as possible, i think the video will definately be helpful. I hope things work out well for you and your little girl.
Good Luck!
Rebecca
hey,
I understand why your worried about how your daughter will react to the appointments and what she should expect, shes very young and may find the situation scary, i know my baby sister is terrified of all doctors. However, the fact that you will now be dealing with a paediatrician is a great thing, they know how to make little kids feel at ease, hopefully he/she will make the experience fun for her. I know my hospital appointments as a child were much easier than they are now. As far as what to expect, her first appointment will probably not involve an EEG or any major tests, the waiting times are not good but that will give you plenty of time to prepare and maybe practise with her. My first appointment was very basic, with tests like blood pressure and heart rate, they also asked a lot of questions so try and prepare yourself to be as clear and precise as possible, i think the video will definately be helpful. I hope things work out well for you and your little girl.
Good Luck!
Rebecca