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Why Does My Family Appear To Think That I Should Be Scared For Surgery Testing????
Sun, 06/23/2013 - 12:42Ever since I received the call from the secretary from the AMU, my family has been acting incredibly weird and off their rocker. I told my sister that I have to go into the hospital soon for Epilepsy surgery testing and her reaction was out of sight crazy. She responded, "What the hell. Are you serious?" and a bunch of other stuff. She threw a fit. My parents are asking me questions about how I feel about this entire situation. My father seems to be more scared than my mother. The sound of his voice drastically changed when I told him about everything that is going to happen soon. It has been like a roller coaster. I believe that they do want me to get better but they are making me feel like they are not as supportive of my decision to continue with the surgery. I want them to realize that this might change my life entirely. I'm okay with the doctors doing the tests and I'm okay with the surgery. I am not trying to worry myself out about this like they are because I know what that is going to lead to.... seizures. It ain't finna rock that way!!!! So I am going to stay calm. Everybody else should feed off of my energy and hope for the best. I have faith that this surgery will work for me.
What do you all think about it?
Re: Why Does My Family
Submitted by Anonymous on Mon, 2013-06-24 - 10:24
Keep in mind that epilepsy is a family affair. Family members experience epilepsy and the problems resulting from or associated with it differently than the person having the seizures. All people involved should be part of the teaching, counseling and discussions before surgery as everyone needs to be prepared and part of the process. While the person with the seizures may be the one having the surgery, the whole family will be experiencing the stresses, hopes and challenges. Support to everyone during the process is crucial, and support among family members is necessary. Talk to your epilepsy team and make sure family in included before surgical testing, before surgery and afterwards. Good luck to all! Epi_help Resource Specialist