Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Thoughts on Wrong Medication

Thu, 02/02/2012 - 12:20
Hello, I am 46 and had my Epilepsy under control until January 2010 when being treated for another condition the Doctor gave me Amatriptaline medication. I took it for three days, within the first two days my seizures had started again so we stopped the medication immediately on the third day and contact my Local GP. He checked and stated that Amatriptaline was a medication that should not be given to Epileptics. (marvellous) Ever since my fits have gotten worse and more convulsive. My speech is now slurred and stuttery and I am slow in my thoughts and reactions. The Hospital and Neurologist they brought in say that the medication couldn't have caused this and if it did it would have stopped as soon as I stopped taking them. I cannot now go out without someone with me as I get no warning of the fits and simply fall flat, some life now because of one idiot Doctor. Has anyone ever had any experience of having taken this drug or know anything more about it and its side effects. Cheers folks.

Comments

Re: Thoughts on Wrong Medication

Submitted by mickmarsters on Mon, 2012-02-20 - 09:53
http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(68)91356-1/abstract

Re: Thoughts on Wrong Medication

Submitted by Jimsun on Thu, 2012-02-23 - 14:00
Hi Mickma- Hope all is well with you. I don't know where in UK you are or what your Consultant/Dr's attitude is towards you having epilepsy reviews. My Consultant is in Newcastle & I have an epilepsy review @ least annually & sometimes more often if the need is felt. eg; my Consultant wants to add an AED to my meds regime, however this won't happen (if @ all) 'til I've had a full review. You should stick to the mantra "If in doubt, shout"! If you haven't had a review yet, insist on one, based around your meds concerns. This always works for me. Give me a shout if you require more specific info. We may not be far from each other too! BW; J. "Even monkeys fall from trees"!

Re: Thoughts on Wrong Medication

Submitted by mickmarsters on Thu, 2012-02-23 - 17:38
Hi thanks for that, I have shouted and managed to get an appointment next week at the Walton Neurology Centre. I found it on line they only deal with Epilepsy and neurology. I'm based near Blackpool in a little village called Hambleton and unfortunately Blackpool doesn't even have a Neurologist on site, they have to bring them in from Preston. Postcode services as they call it. I'm OK if I have a Heart attack though I'm told as Blackpool is great for that. Bloody marvellous. I take Topiramate and Gabapentin at the moment but they haven't worked since the episode with the Amatriptaline but my own GP has done nothing and the Neuro I have been seeing for over a year has done tests but tried no different meds so still stuck with major seizures. Fingers crossed for next week anyway, hope this new place is all it is supposed to be. Michael

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.