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Has anyone had brain surgery due to epilepsy?

Thu, 01/06/2011 - 11:28

May have brain surgery...Need advice!!!!

This is the first time I have ever used this website, so please forgive me if I miss something.  So, here's my story...I am 31 years old.  I was diagnosed with epilepsy in 2004.  I have had a few grand mal seizures (around 6 or 7), but I have a lot of petit mal seizures (complex partial) - over 60 in 2010.  This has greatly affected my life.  I totaled my car in 2010 because I had a seizure while driving.  Thank God no one was hurt, including myself.  Needless to say, I cannot drive right now.  I also has several seizures at work, which put a stress on things.  I have tried many medicines (not sure of spelling), including, Lamictal, Keppra, Carbatrol, and others.  I have tried name brand and generic.  My seizures have not gotten better.  My doc is now recommending brain surgery, as a lesion has been found in my front temporal lobe.  It is currently not a tumor, but could turn into one.  I have not taken the WADA yet, but it will be scheduled soon.  I would love to speak with anyone who has had brain surgery and the results he/she has had.  Thanks!

Comments

Re: Has anyone had brain surgery due to epilepsy?

Submitted by peytonwelch on Mon, 2011-01-10 - 15:00

I don't think I have replied to your message yet, but thanks so much for your honesty.  My wife (Regina) is an RN at Arkansas Children's Hospital and she has been very supportive.  The biggest "stumbling block" is my parents.  My mom wants to play doctor all the time and my dad can simply be a jerk.  My parents are loving people, but they are having a hard time dealing with their emotions.  They have a hard time with allowing my wife and I running our own lives versus them still playing mom and dad.  I am having my Wada test done THIS Thursday and my family will be coming up Wed night to come with Regina and I.  It's a very fine line.  I'm glad things have gotten better with your wife.  I, too, am scared about memory loss and emotional changes.  My memory has gotten worse over the past 2 years and memory loss does not need to continue - but I realize it is a big chance.  Anyway, I could ramble forever...thanks for listening.

I don't think I have replied to your message yet, but thanks so much for your honesty.  My wife (Regina) is an RN at Arkansas Children's Hospital and she has been very supportive.  The biggest "stumbling block" is my parents.  My mom wants to play doctor all the time and my dad can simply be a jerk.  My parents are loving people, but they are having a hard time dealing with their emotions.  They have a hard time with allowing my wife and I running our own lives versus them still playing mom and dad.  I am having my Wada test done THIS Thursday and my family will be coming up Wed night to come with Regina and I.  It's a very fine line.  I'm glad things have gotten better with your wife.  I, too, am scared about memory loss and emotional changes.  My memory has gotten worse over the past 2 years and memory loss does not need to continue - but I realize it is a big chance.  Anyway, I could ramble forever...thanks for listening.

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