Normal EEG but continuing seizures

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Hi,

I have been having e for the past 12-13 years. It was rather well-controlled with medication (phenobarbital) till about 6 to 7 months back, when it started again but with different characteristics. The characteristics changed again about a month back, but my EEG which was sleep-deprived with medication came out to be normal.

Is this possible or could it be because of the mugs of coffee that i had to stay awake? Incidentally, the week i had my eeg, i was seizure free.

Would appreciate if anyone could throw some light on this! :-)

Comments

Re: Normal EEG but continuing seizures

Submitted by Buffy on Thu, 2010-09-16 - 04:36

I had a long struggle with confusion myself. I had a series of EEGs over many years. Early EEGs were declared normal or Within Normal Limits or Artifact. But I kept having problems. Some Neurologists speculated I was having deep seizures, like someone on here mentioned, the ones that can't be reached. Finally a few years ago, I guess it was the right place, right time because it was a random EEG and Bam, there they were. Clearly electrical abnormalities. Then it was repeated on follow up 24 hour test and then again on follow up 3 day test.

Then here's the weird part. Two years later I was having trouble with my headaches, migraines, and such and I ended up having a 5 day EEG as part of this work up to see if the seizures were the problem. They took me off the meds and everything. (Just while I was in the hospital, but still.) Nothing happened. Go figure.

Then fast forward, two years later, I am having another random EEG b/c to check on my seizures since I am complaining of cognitive impairment and fatigue and Bam, all over the place clearly abnormal electrical misfiring. So I get another 3 day EEG. And yep. More clearly abnormal electrical Abnormalities. And all the abnormal tests agree with each other about what type of seizures and where they are located.

So who knows. I personally think that it was there all along. It just had to get bad enough to be seen on film, so to speak. At least that's what it felt like to me. I hope that's not what happens to you, but if it is, I hope you find the help you need. And listen to your gut. Don't let people make you feel like you are going crazy.

I had a long struggle with confusion myself. I had a series of EEGs over many years. Early EEGs were declared normal or Within Normal Limits or Artifact. But I kept having problems. Some Neurologists speculated I was having deep seizures, like someone on here mentioned, the ones that can't be reached. Finally a few years ago, I guess it was the right place, right time because it was a random EEG and Bam, there they were. Clearly electrical abnormalities. Then it was repeated on follow up 24 hour test and then again on follow up 3 day test.

Then here's the weird part. Two years later I was having trouble with my headaches, migraines, and such and I ended up having a 5 day EEG as part of this work up to see if the seizures were the problem. They took me off the meds and everything. (Just while I was in the hospital, but still.) Nothing happened. Go figure.

Then fast forward, two years later, I am having another random EEG b/c to check on my seizures since I am complaining of cognitive impairment and fatigue and Bam, all over the place clearly abnormal electrical misfiring. So I get another 3 day EEG. And yep. More clearly abnormal electrical Abnormalities. And all the abnormal tests agree with each other about what type of seizures and where they are located.

So who knows. I personally think that it was there all along. It just had to get bad enough to be seen on film, so to speak. At least that's what it felt like to me. I hope that's not what happens to you, but if it is, I hope you find the help you need. And listen to your gut. Don't let people make you feel like you are going crazy.

Hello my wife has started

Submitted by crystalbrent24@yahoo.com on Mon, 2015-03-02 - 12:52

Hello my wife has started having seizures in the past two years she's had eeg's ekg's ecg's all of the above all normal she can go lengths of time with no seizures an then multiple episodes continually medicines don't seem to help we have googled seizures an found her seizure symptoms to be almost identical to those of "petite mal seizures" but the hospitals in Virginia have stated that its all mental an not to bring her to the hospital just give her water an observe her even though she has been filmed having full body seizures but the test read normal she has no memory of the incidents an sometimes has memory loss for several days where she doesn't even know her name which almost makes it impossible to work but they denied her disability! Any suggestions

My boyfriend had his first

Submitted by Livvlove6 on Sat, 2018-07-07 - 14:53

My boyfriend had his first seizure in 2015-2016 he didn’t have one until a year later when he first met me in 2017, he was sleeping and half awake, half a sleep and had a seizure. Since then he constantly has them unless he’s on medicine from his doctor to control them, however if he forgets to take it he will have a seizure they got so bad to the point where he fell in the shower and i heard it the door was locked and we had to bust it down or he would have drowned he had 2 seizures that day including one in the hospital. Im concerned because he’s had anywhere between 5-7 and with each one i feel like it gets worse almost? Im the only one besides the doctors at the university of Maryland who witnessed his worst seizure yet, im concerned because his EEG came back normal, he’s generally sleeping when he has one usually around 6-7 am.