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Experience with VEEG and NO seizure activity??
Sat, 08/23/2008 - 16:08I am currently hooked up for VEEG and have now been here for 48 hours. They have stopped one of my meds and decreased another, but still no seizure to record!! It's freaking me out that I'm going through all of this and still may not get any closer to answers!
My abscence seizures started flaring up again this summer - I've been off work due to the seizures since eraly July and traveled 800 miles to Mayo to get some answers. But evidently now that I am sitting around, no seizures.
What will they do if they don't get a reading? Anyone have experience with this??
Thanks.
Comments
Re: Experience with VEEG and NO seizure activity??
Submitted by Karon02 on Mon, 2008-08-25 - 01:22
my daughter has been having VEEG since she was two weeks old shes 5 and half years old now and they just now caught a seizure on the veeg three weeks ago! I feel your pain. Im so sorry!
my daughter has been having VEEG since she was two weeks old shes 5 and half years old now and they just now caught a seizure on the veeg three weeks ago! I feel your pain. Im so sorry!
Re: Experience with VEEG and NO seizure activity??
Submitted by azgecko on Sun, 2008-08-24 - 16:52
In Sept 2007 I was admitted to the Epilepsy Monitoring Unit for VEEG. I was told the typical stay was 3-5 days. I was there for 11 DAYS!! I had minor seizure activity, but not enough for an accurate reading. I was hoping that my hospital stay would help my epileptologist determine the exact focal point because I want to be a candidate for brain surgery! We have been altering my medication since I was diagnosed three years ago trying to make me seizure free. He is threatening to put me back in the EMU. I refuse because I just finished paying off the last hospital stay and it was unsuccessful. He told me my only other option at this point was to have a friend sleep with me to witness what is happening during my nocturnal seizures. I have been sleeping in my friend's bed for 4 days and I want to sleep alone again! I have been waking up with back pain, head aches and experiencing nightmares. Possible seizure activity? My friend is a heavy sleeper and could be sleeping through it. Any ideas for options? I don't want to head back to the EMU!