Twenty-20s Epilepsy Awareness Group

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The “Twenty-20s” initiative was created after 20 young adults from the United States, Canada, Puerto Rico, and Jamaica gathered in July 2014 in Washington, D.C., to participate in the “Young Adult Epilepsy Summit” organized by the North America International Bureau for Epilepsy (IBE) and the Epilepsy Foundation. The weekend event was filled with workshops and discussions on issues associated with epilepsy. Some topics included the stigmas and misconceptions amongst the general public regarding this condition. As a result, ideas were gathered to develop a social media initiative that would raise awareness about epilepsy through personal stories of those living with epilepsy as well as those affected by a family member who has epilepsy.

The aim of this social media project is to change the image of people coping with epilepsy by portraying how these 20 young individuals in their twenties have overcome struggles and have become successful in their own ways. We want to empower and inspire other young adults who have also been affected by epilepsy to pursue their dreams despite adversity.

The work of the “Twenty-20s” continues as a collaboration between Canadian Epilepsy Alliance and Epilepsy Foundation with funding from International Bureau for Epilepsy (IBE).

To learn more about the “Twenty-20s” and support this project, please follow them on Facebook and Twitter.

If you would like to contact them, please e-mail: twenty20sepilepsy@gmail.com

jul

Julia Buldo-Licciardi - New York, New York

paul

Paul Cato - Washington, District of Columbia

rachel

Rachel Ehrhardt - Houston, Texas

alberto

Alberto Giovanni Juarez - San Diego, California

michael

Michael Lesser - New York, New York

zach

Zach Pierce - Thomasville, North Carolina

leigh

Leigh Schommer - Portland, Oregon

regan

Regan Standlick - Richmond, Virginia

Canada

Laura Gutierrez - Toronto, Canada

Laura Gutierrez - Toronto, Canada

Amy Hanes - Kingston, Ontario

Amy Hanes - Kingston, Ontario

Kathleen Hiatt Gaudet - Toronto, Ontario

Kathleen Hiatt Gaudet - Toronto, Ontario

Amanda Kelly - Toronto, Ontario

Amanda Kelly - Toronto, Ontario

suzanne

Suzanne McGuire - Sault Ste. Marie, Ontario

Karima Panjwani - Toronto, Ontario

Karima Panjwani - Toronto, Ontario

Caribbean

Eduardo Garcia Landrau - San Juan, Puerto Rico

Eduardo Garcia Landrau - San Juan, Puerto Rico

Gail Valentine - Kingston, Jamaica

Gail Valentine - Kingston, Jamaica

Resources

Epilepsy Centers

Epilepsy centers provide you with a team of specialists to help you diagnose your epilepsy and explore treatment options.

Epilepsy Medication

Find in-depth information on anti-seizure medications so you know what to ask your doctor.

Epilepsy and Seizures 24/7 Helpline

Call our Epilepsy and Seizures 24/7 Helpline and talk with an epilepsy information specialist or submit a question online.

Tools & Forms

Download our seizure tracking app, print out seizure action plans, or explore other educational materials.