Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.
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Epilepsy Made Me Stronger
My name is Andreina Perez, and I am a 27-year-old Venezuelan living in Los Angeles working as a filmmaker. I was first diagnosed with epilepsy at the...
It’s Important to Talk About Epilepsy
I had my first seizure at the age of 5, but I was not diagnosed with epilepsy until I was 8 years old. I had a tonic-clonic seizure that lasted over...
How Our Family Overcame Doubts with Epilepsy
My son, Rick, was diagnosed with epilepsy on September 15, 2015. After multiple medications failed to control his seizures and his seizures became...
From Denial to Helping Others
I was diagnosed with epilepsy when I was 14 years old after having a tonic-clonic seizure in my sleep. I had an EEG and the epileptologist looked me...
Don’t Ever Give Up
I grew up in Connecticut until I graduated high school. My whole life was spent in a small bubble consisting of my family, my church, and my private...
Living Confidently with Epilepsy
I've been living with epilepsy for 10 years. I'm currently halfway through medical school, and while my epilepsy has hindered me at times, it has...
Shining a Light on SUDEP
My daughter, Emmery, was diagnosed with benign rolandic epilepsy in August 2016 when she was 7 years old after experiencing a grand mal (tonic-clonic)...
Honoring Jax Through Raising SUDEP Awareness
My 8-year-old grandson, Jax, had an infectious smile, gave the biggest and best hugs to everyone, and considered everyone he met family. He loved BIG...
Raising SUDEP Awareness to Honor Marquis
My son, Marquis Devon Chapman, started having seizures at the age of 5 months. It started off as febrile seizures and later turned into tonic-clonic...
Educate Yourself About SUDEP
My husband Renaldo had his first seizure when he was 24 years old. It was a Saturday morning in January, when his boss called me and told me an...