Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Thursday, November 30, 2023
Educating Others About Epilepsy
I was 22 years old when I was diagnosed with epilepsy. In January 2022, I woke up with what felt like a severely swollen tongue, blood on the pillow...
Tuesday, November 14, 2023
Advocating for Myself and Others With Epilepsy
In the fall of 2017, I did not know much about epilepsy. Sure, I had heard about it, but I had no idea what triggers were or that epilepsy affected so...
Thursday, November 02, 2023
My Journey With Epilepsy and Pregnancy
I was diagnosed with atypical absence seizures as a child. I was having hundreds per day and not knowing. To my parents and teachers, it could be...
Thursday, October 19, 2023
Living in the Moment With Epilepsy
My name is Campbell. I am 18, and I suffer from tonic-clonic seizures. My first seizure was a complete surprise, and so was the epilepsy diagnosis...
How I Found Hope on My Epilepsy Journey
I was three when I first had a tonic-clonic seizure. I can't imagine the thoughts that went through my mother's head. She is the definition of a true...
Thursday, September 07, 2023
Not All Seizures Are the Same
I was born a normal baby boy in Maracaibo, Venezuela, in 1977. Things were simple, and I had no medical problems for the first few years. Then...
Tuesday, August 29, 2023
How I Became A Voice for the Epilepsy Community
I was diagnosed with epilepsy in 2008 when I was nine. Having epilepsy was extremely rough in the beginning. All of the seizures I had growing up were...
Thursday, August 17, 2023
How I Live With Epilepsy and Without Limitations
On a beautiful summer day at the age of 23, I visited my first neurologist. His people skills could have been better, but he was my ticket to figuring...
Wednesday, August 09, 2023
Inspiring Others Through Sharing My Story
I have had epilepsy since birth but did not develop tonic-clonic seizures until I was 18. At age 20, I had a seizure that lasted for 20 minutes, and...
One Day at A Time With Epilepsy
After years of fearing what others would think of me, I am sharing my story. I was 18 when I had my first seizure. It was an absence seizure. When I...