Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Thursday, September 07, 2023
Not All Seizures Are the Same
I was born a normal baby boy in Maracaibo, Venezuela, in 1977. Things were simple, and I had no medical problems for the first few years. Then...
Tuesday, August 29, 2023
How I Became A Voice for the Epilepsy Community
I was diagnosed with epilepsy in 2008 when I was nine. Having epilepsy was extremely rough in the beginning. All of the seizures I had growing up were...
Thursday, August 17, 2023
How I Live With Epilepsy and Without Limitations
On a beautiful summer day at the age of 23, I visited my first neurologist. His people skills could have been better, but he was my ticket to figuring...
Wednesday, August 09, 2023
Inspiring Others Through Sharing My Story
I have had epilepsy since birth but did not develop tonic-clonic seizures until I was 18. At age 20, I had a seizure that lasted for 20 minutes, and...
One Day at A Time With Epilepsy
After years of fearing what others would think of me, I am sharing my story. I was 18 when I had my first seizure. It was an absence seizure. When I...
My Life With Seizures
I started having focal onset aware seizures in childhood. The feeling was similar to when your stomach flips on a roller coaster but rushed up to my...
Wednesday, June 21, 2023
Epilepsy Can Happen to Anyone
I live in the UK. I am sharing my story because I was inspired by other people who have shared theirs. I want people to know that epilepsy can happen...
Conquering Each Day With Epilepsy
December 15, 2019, is a day I will never forget. It seemed like a typical day. I was getting ready for midterms, and I felt in control. I took a nap...
Tuesday, May 23, 2023
Pursuing My Goals Despite Epilepsy
I started having absence seizures when I was 9 years old. They came out of nowhere. When you are a kid, having to go for weeklong medical testing and...
Thursday, May 11, 2023
Finding Hope Through Music
I was born with a 14:22 chromosomal translocation, of which little is known, but it may contribute to my epilepsy. When I was a toddler, I had several...