Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Tuesday, October 31, 2023
Sharing Our Stories to Create Awareness
I was diagnosed with epilepsy as an adult. My wife and I were driving home from Las Vegas, and apparently, I had experienced a seizure while in the...
Wednesday, June 28, 2023
Community Support Is Important for Caregivers
I was playing with our son Edward one morning when I noticed his eye twitch. He was 7 months old at the time. It seemed off, so I called our...
Thursday, March 16, 2023
Fighting Epilepsy in Memory of Micayla
In 2005, my daughter Micayla was 4 years old. While talking to her, she went limp and appeared to have a seizure. I had never witnessed a seizure...
Connecting Epilepsy Families through Theater
Our family has been affected by epilepsy since my son had his first atypical tonic-clonic seizure when he was 6 months old. He was eventually...
Honoring the Life of Brenna
Brenna was first diagnosed with epilepsy when she was nearing her 16th birthday. We lost her to Sudden Unexpected Death in Epilepsy (SUDEP) in January...
Giving Back to Help Others on Their Journey
Our daughter Alex seemed normal at birth up until she began to crawl. That is when we noticed she wasn’t using her right arm or hand. We later found...
Honoring the Memory of Kate
“What is the matter with Kate?” There was never an easy answer to that question. Our daughter Kate had her first tonic-clonic seizure unexpectedly in...
Fighting for Domenick
When Domenick was four years old, he started having these “episodes” where he would be running around playing and laughing and then would stop dead in...
Perry Family eJourney
Hear from Bernard and Edana Perry as they share their story, including how SUDEP awareness can help families and individuals minimize their risk. You...
Brogran Family eJourney
Teresa never imagined her son Tommy would be impacted by seizures – or that they would continue his entire life. As his mother, she often wonders what...