The Human Epilepsy Project
The Human Epilepsy Project is a group of registry-based studies for people living with epilepsy. The Human Epilepsy Project has been jointly supported by the Epilepsy Foundation and the Epilepsy Study Consortium, both nonprofit patient and science focused organizations. Scientists, clinicians and families joined together to collect information about people with epilepsy to help better understand the challenges of living with seizures, to learn how people respond to different treatments and to identify markers (or ways) for improving treatment success. This information is critical to accelerate the development of new treatments, prevention strategies and cures for many types of epilepsy.
What Is the HEP2 Study?
The HEP2 Study is a research project to better understand what happens over time in people with focal seizures that haven't responded to previous therapies.
Study participants were asked to:
- Keep track of seizures and medications using a seizure diary
- Answer questions about their medical history and seizures
- Visit the study team three times over two years for health exams and blood tests.
- Complete surveys about their quality of life, mood, mental functioning, general health, and healthcare visits or tests.
Participants received compensation for each study visit.
Who Participated?
Participants joined the HEP2 study at any one of the recruiting study centers. These study centers were selected because they are epilepsy centers with track records of conducting high-quality research in epilepsy and efficiently recruiting participants into studies.
Learn More:
Contact the HEP TeamWhy Is HEP Important?
The HEP Study for Focal Epilepsy relies on people with epilepsy to become part of the team - helping doctors and scientists unlock the mysteries of epilepsy.
Participants worked with doctors to closely monitor their epilepsy, including careful tracking of their symptoms and medicines using My Seizure Diary. The doctors carefully studied each person's epilepsy, examined blood proteins, DNA, treatments, side effects, and questionnaires about mental function and mood.
Working together, we can discover clues about each individual with epilepsy to help us understand how people can become seizure-free and who will respond to medicines. This knowledge will help people who get epilepsy in the future have more answers instead of questions.
Resources
Epilepsy Centers
Epilepsy centers provide you with a team of specialists to help you diagnose your epilepsy and explore treatment options.
Epilepsy Medication
Find in-depth information on anti-seizure medications so you know what to ask your doctor.
Epilepsy and Seizures 24/7 Helpline
Call our Epilepsy and Seizures 24/7 Helpline and talk with an epilepsy information specialist or submit a question online.
Tools & Resources
Get information, tips, and more to help you manage your epilepsy.