Epilepsy Foundation to Host Virtual Kids Crew “World Changer Celebration”

Tuesday, February 2, 2021

Event Honors Members Who Have Done Great Work in their Community for the 3.4 Million People in the U.S. Living with Epilepsy

MEDIA ADVISORY

WHAT

The Kids Crew World Changer Celebration is a special night hosted by the Epilepsy Foundation, virtually, to honor and recognize the work of 21 Kids Crew members who have dedicated time to learn about epilepsy, help their community and give back. The 2020 World Changers had eight activities to complete in a year to earn themed pins, including: Created Awareness; Athletes vs Epilepsy 10-Day Challenge; Act of Kindness; Educated Others; Advocated For Change; Walked Together; Lemonade for Livy and Purple Pumpkin Project. The event is supported by Neurelis. 

WHEN

Saturday, February 6, at 7 p.m. ET

WHERE

Virtual celebration; open to members of the media.

WHO

  • Laura Thrall, President & CEO, Epilepsy Foundation
  • Hailey Scheinman, Chair, Kids Crew Leadership Council
  • Jon Scheinman, Director of Youth Programs, Epilepsy Foundation
  • Gitanjali Rao, TIME's 2020 "Kid of the Year"

WHY

The Epilepsy Foundation Kids Crew was created by Hailey Scheinman and her family to help kids navigate through their epilepsy journey, teach them about epilepsy and seizures, and empower them to make an impact for those affected by epilepsy. The program started because of Hailey’s twin sister Livy who lives with multifocal, partial epilepsy caused by a brain malformation. Since its creation in 2016, Kids Crew has grown to 3,400 members. For more information about Kids Crew activities and to register your kids, visit epilepsy.com/kids-crew

ABOUT THE EPILEPSY FOUNDATION

With a network of partners throughout the United States, the Epilepsy Foundation is leading the fight to overcome the challenges of living with epilepsy. The Foundation connects people to treatment, support and resources; leads advocacy efforts; funds innovative research and the training of specialists; and educates the public about epilepsy and seizure first aid. For more than five decades, the Epilepsy Foundation has shone a light on epilepsy to promote awareness and understanding, and to advocate for laws that matter to people with epilepsy, while also funding epilepsy research and supporting epilepsy investigators and specialists in their early careers. In partnership with the CDC, the Epilepsy Foundation has helped to improve access to care for people with epilepsy, expanded its digital reach and online resources in homes across the country, and trained more than 600,000 people in seizure recognition and first aid. The Epilepsy Foundation has also assisted more than 140,000 people through its 24/7 Helpline, and continues to focus on innovation, new therapies, community services, advocacy and education as key priorities. To learn more visit epilepsy.com or call 1.800.332.1000. Follow us on Facebook and Twitter.

# # #

Contact Name: 
Jackie Aker
Contact Phone: 
(310) 846-9272
Contact Email: 

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
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