Everyone has a story...

3.4 million people live with epilepsy in the U.S.

Worldwide it’s 65 million.

One in 26 people in the U.S. will develop epilepsy at some point in their lifetime – regardless of age, race, or gender.

A complex disease encompassing many types of seizures, each person with epilepsy is different. A third of the people with epilepsy live with uncontrolled seizures because no available treatment works for them. Many more live with serious side effects from their medication as the price of seizure control.

Yet people living with epilepsy dare to defy their seizures. They dare to live to their fullest potential.

The Power of Shared Stories

And they share their stories to end the fear and misunderstanding that surrounds seizures.

They fight to raise awareness, educate the public, and raise funds to support the development of new therapies and treatments.

They find strength in community.

Share your story. Make a difference today!

Stories of People Living with Epilepsy

Get to know some of the brave and inspiring people who live with epilepsy by reading their stories.

Veronica: A Life Changing Experience with a Clinical Trial

Meet Veronica C., manager of foundation relations at the Epilepsy Foundation and a person with epilepsy who participated in a clinical trial. Veronica sat down with Liz Dueweke, manager of communications, to discuss her experience. Read more

Brittany: Finding a Personal Passion in Clinical Trials

Meet Brittany, manager of patient recruitment at Engage Therapeutics, Inc., and a woman living with epilepsy. She found complete seizure control after participating in a clinical trial and is a passionate advocate for clinical trials. Brittany spoke with Liz Dueweke MPH, manager of communications at the Epilepsy Foundation, about her journey. Read more.

Meet Nina: Best of Both Worlds

Nina Mago lives in Uganda and runs the Purple Bench Initiative - Uganda. In 2019, she represented the entire continent of Africa at the 33rd International Epilepsy Congress in Bangkok, Thailand, as a Golden Light Award winner. Learn about her remarkable story of speaking up for people living with epilepsy. Read more. 

Natalie: Angels of Epilepsy

Drawing on the power of the epilepsy community, Natalie B. created a non-profit organization called Angels of Epilepsy©️ to give back. Read more.

What Epilepsy Means to Farrah

Farrah's young daughter lives with two types of epilepsy. When people ask Farrah what epilepsy is, so much comes to mind besides just seizures. Farrah shares what epilepsy means for her family. Read more.

My Studio E Journey

Katelyn B. shares how Studio E: The Epilepsy Art Program helped her gain perspective on her epilepsy diagnosis. Read more.

Why Kerri Walks

In the lead up to the 11th Annual National Walk for Epilepsy, Kerri C. of McHenry, Maryland, shares her epilepsy story. Read more.

Elisabeth & Kim's Story

The magic of "The Nutcracker" brought Kim a miracle for her dancing daughter Elisabeth. Read more.

Kevin’s Story

Kevin Oliver remembers the exact moment he found out he had epilepsy — and he also knows it was years too late. Read more.

Tracy’s Story

The moment you first meet Tracy Estrada-Hiett, you feel as if there is a story. And there is. Read more.

Barbra’s Story

I was officially diagnosed with epilepsy when I was 18, but, in hindsight, I realize I had my first seizures while I was still in high school. Read more.

An Advocacy Journey

Dr. Nikesh Ardeshna writes about the many paths he has taken on his journey to help patients, peers, and legislators understand epilepsy and seizures. Read more.

Sally's Story

"A Family's Journey Through a Clinical Trial," presented at the 2016 Epilepsy Foundation Pipeline Conference

 

Hannah's Story

Handling Seizures in Public – Grace, Courage and Awareness

on: 
Tuesday, May 14, 2019