Brandy Fureman, PhD

EHLS Brandi

ELHS Network Coordinating Center Lead

Dr. Brandy Fureman is Vice President for Research and New Therapies at the Epilepsy Foundation. Her responsibilities include overall direction of all Foundation new therapies grant and innovation programs, the Research Roundtable in Epilepsy, Epilepsy Pipeline conferences, and Foundation activities to engage patients and families in the research process. She is a Principal Investigator of the Rare Epilepsy Network, the Epilepsy Learning Healthcare System, and the Human Epilepsy Project. She serves as a panel member of the Congressionally Directed Medical Research Program on Post-traumatic Epilepsy, and as a member of the Interagency Collaborative to Advance Research in the Epilepsies (ICARE). Dr. Fureman previously served with the National Institute of Neurological Disorders and Stroke (NINDS) as a Program Director in the Channels, Synapses and Circuits cluster, overseeing a portfolio of basic, translational and clinical epilepsy research, including clinical trials. Dr. Fureman also worked as a Clinical Research Project Manager in the NINDS Clinical Trials Group, where she was responsible for overseeing the NINDS Clinical Research Collaboration Network and a number of Data and Safety Monitoring Boards for Phase III clinical trials in epilepsy, head injury, and stroke rehabilitation. Dr. Fureman was a Presidential Management Fellow at the NINDS, graduated from Cedar Crest College with a B.S. in Genetic Engineering Technology and received her Ph.D. in Neuroscience from the Department of Neuroscience and Anatomy at the Pennsylvania State University College of Medicine. Her research interests focused on molecularand behavioral effects of ion channelopathy and triggers of dysfunction in episodic neurological disorders.

Kathleen Farrell, MB BCh BAO

EHLS Kathleen

ELHS Program Director

Dr. Kathleen Farrell is the Director of Clinical Research at the Epilepsy Foundation, where she has been since 2015. She directs initiatives including the Research Roundtable for Epilepsy, the Epilepsy Foundation Clinical Trials Portal and the Pipeline - working with industry members, academics and regulators to drive scientific advancement in the seizure disorder space. She is the Program Manager for the Epilepsy Foundation-led Epilepsy Learning Healthcare System, in collaboration with the Anderson Center for Health Systems Excellence (Cincinnati Children’s Hospital) and other clinical and academic partners. Kathleen manages the SUDEP Institute InnoCentive Challenge, accelerating research into the pathology and possible interventions for sudden unexpected death in epilepsy. She also oversees the Foundation’s participation in the PCORI-funded Rare Epilepsy Network, which includes a patient centered database with which to study catastrophic epilepsies.

An author of numerous scientific articles, Dr. Farrell worked as a medical resident at Beaumont Hospital in Dublin, Ireland prior to joining the Epilepsy Foundation. She earned her medical degree from University College Dublin School of Medicine and Medical Science, and successfully completed the United States Medical Licensing Examinations upon returning to the US.

Jeffrey Buchhalter MD, PHD

EHLS Jeffrey

Co-Investigator, ELHS Clinical Core and Quality Improvement

Jeffrey Buchhalter MD, PHD is Adjunct Professor of Pediatrics at the University of Calgary and former director of the pediatric epilepsy program at Alberta Children’s Hospital, Phoenix Children’s Hospital and the Mayo Clinic, Rochester. He is a former member of the Task Force on Terminology and Classification and current member of the Big Data Task Force of the International League Against Epilepsy. His current research program involves informatics approaches to improving outcomes for children with epilepsy. via structured electronic health records. Dr. Buchhalter is the Quality Adviser for the Epilepsy Learning Healthcare System network, a multi-site, quality improvement-based project & leads the Pediatric Epilepsy core of this project. He participates on the American Academy of Neurology Coding (ICD-10)

sub-committee, was a member of the task forces that produced practice guidelines for the Vagus Nerve Stimulator and Sudden Unexpected Death in Epilepsy and recently co-lead the group that created the first Quality Measures for Child Neurology.

Susan T. Herman, MD

ELHS Susan

Co-Investigator, ELHS Clinical Core;

Dr. Susan Herman is an Assistant Professor of Neurology at Harvard Medical School and an attending physician at Beth Israel Deaconess Medical Center. Dr. Herman received her undergraduate degree from Johns Hopkins University and her medical degree in 1993 from Columbia University College of Physicians and Surgeons. She completed a medicine internship, neurology residency, and fellowship in clinical neurophysiology and epilepsy at Columbia-Presbyterian Medical Center in New York. At BIDMC, she directs the ICU-EEG monitoring program and the Epilepsy Monitoring Unit. Dr. Herman is board certified in Neurology, Clinical Neurophysiology, and Epilepsy. She is Vice President of the National Association of Epilepsy Centers, a past President of the American Clinical Neurophysiology Society, Co-Chair of the Fellows/Junior Investigator Professional Development Committee of the American Epilepsy Society, and member of the Registry Committee and Epilepsy Quality Measures Workgroup of the American Academy of Neurology. Dr. Herman’s clinical research focuses on treatment of drug resistant epilepsy, use of innovative EEG technology for diagnosis of seizures and epilepsy, and standardization of care for patients with epilepsy. She is Co-PI of the Clinical Core of the Epilepsy LHS.

Alison Kukla, MPH

EHLS Alison

ELHS Community Engagement Core

Alison Kukla is the Population Health Coordinator at the Norfolk Department of Public Health in Virginia. She coordinates the district’s community health improvement activities, including the planning, implementation, and evaluation of the Community Health Improvement Plan. She engages with stakeholders and community members to organize community outreach events and manages the district’s CDC PHHS Block Grant focusing on obesity prevention. From 2010 - 2017, she worked as a political appointee for the Obama Administration in both The White House (Office of Public Engagement and Intergovernmental Affairs) and the U.S. Environmental Protection Agency (Office of Children’s Health Protection).

Alison was diagnosed with epilepsy as a college freshman in 2006. Since then she has become an active advocate, volunteering with various epilepsy organizations, foundations and non-profits. In May 2018, she became a member of the Epilepsy Foundation of Virginia’s Professional Advisory Board. Alison is originally from Youngstown, Ohio and has a bachelor’s degree from Youngstown State University. She recently completed her M.P.H. from the Rollins School of Public Health at Emory University.

Lidia Moura, MD, MPH

ELHS Lidia

Director, ELHS Data Coordinating Center

Dr. Moura is a neurologist and health services researcher in the Department of Neurology at the Massachusetts General Hospital (MGH) and Assistant Professor of Neurology at the Harvard Medical School. At the MGH, she completed a research fellowship in clinical trials, a two-year clinical fellowship in Clinical Neurophysiology and Epilepsy, and a one-year clinical fellowship in Advanced General/Autoimmune Neurology to focus on the care of patients with multiple clinical needs. She holds a Master's Degree in Public Health from the Harvard T.H. Chan School of Public Health (HSPH) with concentration in Clinical Effectiveness. She is a PhD student in Population Health Sciences (Epidemiology) at the HSPH and the Harvard Graduate School of Arts and Sciences. She is the director of the MGH Neuro Value laboratory. Her work has been sponsored by the American Brain Foundation, Harvard University, and the NIH/National Institute of Aging (NIH-K08, P01 and R01 awards). Dr. Moura's studies combine the use of medical records, registries, patient-reported surveys and large automated data sets to assess care quality and efficiency in neurology. With strong collaborations at the MGH Center for Health Policy Analysis and the Harvard T. H. Chan School of Public Health, Dr. Moura brings clinical, behavioral and economic perspectives to the Epilepsy Learning Health System.

Nathalie Jette, MSc, MD

Nathalie Jett

ELHS Quality Improvement Lead

Dr Jette is a Professor of Neurology and Population Health Science & Policy at the Icahn School of Medicine at Mount Sinai (ISMMS). She is a health services researcher, epileptologist, Vice Chair for Clinical Research Neurology and Chief of the Division of Health Outcomes and Knowledge Translation Research across the ISMMS health system. She is past President of the Canadian League Against Epilepsy, Chair of the North American Commission of the International League Against Epilepsy (ILAE), Chair of the ILAE Guidelines Task Force, and an Associate Editor for Epilepsia. She has been the recipient of over 50 research, teaching and clinical awards, including the ILAE Ambassador for Epilepsy Award in 2017. She studies appropriateness and quality-of-care, outcomes (especially surgical), psychiatric comorbidities and is involved in implementation science (including development of e-tools and apps) for people with neurological conditions, particularly those living with epilepsy.

Authored By: 
Elaine Kiriakopoulos
Authored Date: 
Reviewed By: 
Patricia O. Shafer
Saturday, September 1, 2018