Ellie's Story
Kids Making A Difference

Ellie's Story

Ellie had her first tonic-clonic seizure when she was six years old in first grade. For her, it was very scary. She thought she could hear everything people were saying, but she couldn't talk or wake up. After her seizure, she didn't speak for about an hour. Ellie is now in eighth grade and her seizures have been controlled with medication. She lives a very active life and doesn’t let anything hold her back. She has played volleyball, basketball and cheers. This year, she is captain of her JV cheerleading team and also cheers competitively!

Now, Ellie wants to help others learn about epilepsy. She recently spoke to third and fourth graders at her school to educate them about epilepsy and to explain how it has a ected her life. We are so proud of Ellie and what she has done to help spread awareness and to teach others about epilepsy!

Why do you think it is important to educate kids about epilepsy?
Ellie: I think it's important for other kids to know about epilepsy because even though it can't be cured, it can be treated. Kids can lead a very active life. I also think it's important, if you or someone you know has a seizure disorder, you should have an action plan.

What was it like to present in front of the class?
Ellie: I was very nervous because this was the first time I have ever spoken publicly about my seizure disorder. The students had great questions and made me feel really comfortable. I can't wait to talk to the next group of students.