Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Thursday, May 11, 2023
Finding Hope Through Music
I was born with a 14:22 chromosomal translocation, of which little is known, but it may contribute to my epilepsy. When I was a toddler, I had several...
Thursday, May 04, 2023
Facing Epilepsy with My Community
I was diagnosed with epilepsy in 2005 at the age of 25. Throughout my journey with epilepsy, I’ve had many different types of seizures. Most of the...
Friday, April 28, 2023
Confidence to Cross the Finish Line
I was diagnosed with epilepsy in 2012 after having what I now know to be focal impaired awareness seizures . I had no idea epilepsy was anything other...
Wednesday, April 19, 2023
Take It One Day at a Time
I was diagnosed with epilepsy at age 13. Being in middle school and finally getting the diagnosis was a lot to handle. Not only did I now have...
Thursday, April 13, 2023
My Journey with Epilepsy
My life with epilepsy has been very interesting. I was not diagnosed until I was 20 years old and, I had never heard of the condition. I was lost. I...
Wednesday, April 05, 2023
More than Seizures
In February 2022, I was diagnosed with epilepsy, which was a surprise. Until then, I was told the seizures and falls I was experiencing were from...
Thursday, March 30, 2023
From Donuts to "Epilectra"
Every 20 years or so, I’m diagnosed with a different autoimmune disorder. At 8, it was Hashimoto’s Disease (hypothyroidism). At 30, type 1 diabetes...
Thursday, March 23, 2023
Si tienes epilepsia, no estás solo
Soy una de las 26 personas que tienen epilepsia. En el 2019, tuve una crisis epiléptica que fue el comienzo de algo que nunca podríamos haber...
Thursday, March 23, 2023
If You Have Epilepsy, You’re Not Alone
I am one of the 1 in 26 people who have epilepsy. In 2019, I had a seizure that was the beginning of something we could never have imagined. Epilepsy...
Wednesday, March 22, 2023
Aiming High with Epilepsy Awareness in Arkansas
My name is Sadie Kirk, and I am a 17-year-old senior at Parkview Arts and Science Magnet High School in Little Rock, Arkansas. I am a 2023 Girl Scouts...