The Chapter Executive Director leads and implements the various programs and activities of the chapter. This position provides strategic leadership for the chapter by working with the Senior Management Team and the Chapter Advisory Board to establish, implement and monitor long and short-range goals and objectives.

Essential Duties and Responsibilities

Fundraising – 40%

  • Works with Development staff to establish a fundraising plan which fulfills the anticipated financial needs of the chapter. Responsible for execution of the fundraising plan with the assistance of Development staff.
  • Conducts a minimum of one Walk to End Epilepsy event in the chapter territory – with the goal of having a walk in any city with a population of 100,000 or more.
  • Based on the size and potential of the Chapter - conducts a second fundraising event.
  • Coordinates all Chapter sponsorship opportunities and activities.
  • Works collaboratively with Development staff to manage individual donors – to include maintaining a portfolio of 10 – 20 donors.
  • Fully utilizes Stratus Live to manage donors and program participants.

Program Management & Delivery – 40%

  • Manages and delivers Epilepsy Foundation core programs: education, advocacy, support, research, wellness.
  • Develops and maintains strong working relationships with hospitals, epilepsy centers, healthcare providers, medical societies, industry partners, state/county health departments.
  • Collaborates with and engages appropriate community resources, organizations and groups toward the advancement of the chapter's program objectives.
  • Works collaboratively with Program staff, evaluating program activities and developing program expansion projects.
  • Works collaboratively with the Advocacy staff as the state point of contact for advocacy and policy matters.
  • Works collaboratively with marketing & communications staff to deliver public awareness campaigns and initiatives.
  • Manages volunteers to include collaborating with Field Operations staff to advance the mission of the Foundation through volunteers. Assists in recruiting, training and providing ongoing support of program volunteers in order to expand the reach of Chapter programs.
  • Attends conferences and meetings as scheduled by the Epilepsy Foundation. (Skill Building Institute, Leadership Meeting, Teen Speak Up! Public Policy Institute.)

Board – 10%

  • Together with the Chapter Advisory Board Chair, leads and manages the Chapter Advisory Board to include setting and monitoring expectations to meet organizational goals and objectives.

Admin – 10%

  • Implements procedures and policies required to manage chapter operations.
  • Supervises chapter staff.
  • Maintains chapter stats and reports on various aspects of Chapters operations (iCarol - program, Stratus Live – donors and participants, Volunteer Hub - volunteers)
  • Works with Finance staff to exercise fiscal management by following financial policies and presenting budget recommendations and regularly reporting on the financial performance of the chapter.

Education and Experience

  • Five to seven years of demonstrated success in fundraising, program management and volunteer management.
  • Must be able to accept responsibility, work with minimum direction and supervision, and obtain the support and cooperation of staff and volunteers.
  • Ability to both develop and deliver program and fundraising events.
  • Ability to work collaboratively with various Epilepsy Foundation departments.
  • Bachelor's degree / Master's degree preferred.

Specific Knowledge, Skills, Abilities, Licenses, Certifications, Etc.

To perform the job successfully, an individual should demonstrate the following competencies to perform the essential functions of this position:

  • Leadership — the individual inspires and motivates others to perform well and accepts feedback from others.
  • Innovative Fundraiser — the individual is creative and thinks outside the box in order to develop new sources of revenue.
  • Planning and Organizing — the individual prioritizes and plans work activities, uses time efficiently and develops realistic action plans.
  • Analytical — the individual synthesizes complex or diverse information.
  • Problem Solving — the individual identifies and resolves problems in a timely manner and gathers and analyzes information skillfully.
  • Oral Communication — the individual speaks clearly and persuasively in positive or negative situations, demonstrates group presentation skills and conducts productive meetings.
  • Delegation — the individual delegates work assignments, gives authority to work independently, sets expectations and monitors delegated activities.
  • Management Skills — the individual includes staff and volunteers in planning, decision-making, facilitating and process improvement; is accessible to staff and volunteers; provides regular performance feedback; and develops skills and encourages growth in others.
  • Quality Management — the individual looks for ways to improve and promote quality and demonstrates accuracy and thoroughness.
  • Judgment — the individual displays willingness to make decisions, exhibits sound and accurate judgment, and makes timely decisions.
  • Willingness to travel and work extended hours, including weekends and evenings, as necessary.
  • Performs other duties, as required.

This position description may not describe all duties, responsibilities and skills associated with this position. It is intended to portray the major aspects of the job and is not meant to be all inclusive. Other duties or skills may be required.

To Apply

Interested candidates should submit a cover letter, a resume (or CV) in Word format to For more information about what we do, visit the Epilepsy Foundation at