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Together we can make a difference

Toll Free Helpline: 1-800-332-1000 – 24 hours a day, 7 days a week

The Epilepsy & Seizures 24/7 Helpline has trained information specialists standing by to answer your questions about epilepsy and seizures and provide you with help, hope, support, guidance, and access to national and local resources.

 


 

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FREE SEIZURE FIRST AID TRAINING

To schedule training in Utah, please contact Margo Thurman mthurman@efa.org or call 801-455-6089

There is no fee associated with any of the above training through the Epilepsy Foundation Utah.

 


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Research and New Therapies

To achieve our mission of creating a world without epilepsy and lives free from seizures and side effects, we are developin an epilepsy research ecosystem that covers the entire spectrum of discovery from the idea to market. We foster the development of new scientists and support research that leads to better treatments and care. We strive for excellence, innovation, and radical thinking to find cures.  Click here for additional information

 


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Teens Speak Up! and Public Policy Institute - Washington, DC

Teens Speak Up! and the Public Policy Institute is the Foundation's centerpiece advocacy initiative. Every year more than 175 advocates, including Epilepsy Foundation local office staff, parents, teens, health care providers, and volunteers from across the nation. Through this initiative, we are able to strengthen our advocacy network and share updates on the state of epilepsy research & funding, as well as give our families an opportunity to speak with Congress and share their stories of living with epilepsy.  Click here for additional information.


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Kids Crew & Local Kids Crew events   

The Epilepsy Foundation created a program for youth that are impacted by epilepsy to stay involved, make friends, and find a sense of community. The Kids Crew Program is FREE and is easy to register online. Click here to learn more and how to register! 

The Epilepsy Foundation Utah will have periodic events held for our Kids Crew Members. If you have any suggestions or interests in a Kids Crew Program, please email utah@efa.org.  

 


 

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Epilepsy Conference & Educational Webinars  

Celebrate National Epilepsy Awareness Month by joining us to hear from leading experts about resources, the latest in technology for Epilepsy, and the most current updates in research and development.  There will be a Q&A following the presentations with a panel of experts.  Mark your calendars for the 2020 Seizure Strategies Seminar will take place on November 14th at the Intermountain Medical Center.

 


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Wellness Institute

The Epilepsy Foundation’s Wellness Institute believes that everyone, including people with all types of epilepsy, deserves to live a full and productive life to the best of their abilities. We hope to share practical and effective strategies to enhance your wellbeing and overall quality of life by raising awareness about healthy behaviors, promoting evidence-based programs and activities, partnering with local and national organizations, and sharing research.  Click here to learn more.

 


 

Sudden Unexpected Death in Epilepsy (SUDEP) Institute

SUDEP is the sudden, unexpected death of someone with epilepsy, who was otherwise healthy. In SUDEP cases, no other cause of death is found when an autopsy is done. Each year, about 1 in 1,000 people with epilepsy die from SUDEP. This is the leading cause of death in people with uncontrolled seizures.  Click here to learn more.

K(NO)W SUDEP NOW!, by SUDEP Institute, The Cameron Boyce Foundation

 

 

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Transportation Options

Are you or a loved one unable to drive due to the challenges of epilepsy and seizures?

Are you looking to find a way to get around in your area?

Here are some statewide option resources to assist in getting people with disabilities transportation to work, doctor's appointments, social events, and more. there are also programs included that provide transportation for those with disabilities who have no other means of accessing necessary specialized services and activities.

 

 

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Medical Home Portal (allows you to search for transportation options by zip code)

 

 

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UTA (Utah Transit Authority) also provides accessibility for those with disabilities, along with reduced fare for qualified people with disabilities. Click here for more information.

 

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Members, families, social workers, and health care professionals all book rides via the online registration portal or call centers. LogistiCare ensures eligibility and schedules the most appropriate transportation provider to meet their needs.

Ride: Drivers pick up members at their homes, take them to their appointments, and bring them home in a timely manner. If that ride doesn't happen to the member's satisfaction, we care, and will assign a staff member to help. More often than not, drivers go above and beyond their call of duty. 

Click here for the LogistiCare website


 

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Sign up Now

 

Volunteer for the Epilepsy Foundation Utah
 

Did you know that there are more than 30,000 people in Utah who have epilepsy?

 

We need YOUR help to make our events and programs a success!

To start, create an account on our VolunteerHub webpage to see what volunteer opportunities we need filled!

 

Sign up Now

 

 

 


 

Awareness Activities

 

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Purple Pumpkin Project

 

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Lemonade for Livy

     

 

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