in the news

Each time a story about epilepsy is in the news, it is a new opportunity to educate someone, reach an individual in need of our services and spread awareness. We encourage you to share these stories with your friends, family and colleagues!


Epilepsy Foundation of Northeastern New York Urges Governor Hochul to Sign S.6603 to Provide Medicaid Beneficiaries with Improved Access to Life Changing Medications

Albany, NY (December 23, 2021) – The Epilepsy Foundation of Northeastern New York today is urging Governor Kathy Hochul to sign S.6603 by Senator James Skoufis (D) and Senator Mike Martucci (R-C-I) to provide New York’s 7.1 million Medicaid Beneficiaries with improved access to the medications they need to manage chronic and often life-threatening medical conditions by allowing patients to fill their prescriptions at a pharmacy of their choosing. Read more...


EFNENY wins Capital Region Gives 

The 23,000 votes have been counted... AND WE COULDN'T THANK YOU ENOUGH!

We so appreciate every single vote that was cast to support our foundation. We are so lucky to have won the Albany Times Union Capital Region Gives $100,000 Giveaway. We are looking forward to utilizing this gift as we continue to #UseOurBrains to #EndEpilepsy.

Awards Dinner celebrates accomplishments of 2018

There are 150,000 nonprofit organizations in the state of New York. Last night, we celebrated the people who choose us to be the one they lock arms with and make a change. 
Last night we said thank you to our 2018 Winning Kid, Whitney. She was an incredible representation of children with epilepsy. We were so lucky to have her share her story and become the face of our #EndEpilepsy campaign. Connor McCagg was also recognized for winning not one, but two scholarships through the agency. 
We honored staff member, Mike Schmidt for 15 years of service. Alongside him were board members Mike Hoffman for 10 years and Rusty Senecal for 15 years. We thank you for your dedication to our mission.
We also recognized our incredible supporters, our Red Flame Corporate sponsors. Thank you, Center for Disability ServicesKeyBank, Lundbeck, The William and Irene Sedutto Family Fund, Sunovion Pharmaceuticals, Supernus, and Turf Hotels. We also thanked our many, many Special Event, Corporate Sponsors. Because of their help, we raised a total of $218,000 during our 2018 special events.

We congratulated Mazzone Hospitality for their winning Confections in Chocolate Best Themed Dessert. We honored WVCR 88.3 The Saint with the Epilepsy Awareness in the Media award. Darlene McGraw won the Individual Advocacy and Achievement Award and she gave a killer acceptance speech. Bob and Debbie Bain were honored with the Julie Eisele Advocacy award Lifetime Achievement and also had a wonderful acceptance speech. We recognized our Create Community Studios Art Therapy students and showcased their fine work during cocktail hour. Finally, and most fitting with the incoming weather, we honored Nolan Dutcher, Barbara, and Ed King and Siena College- Franciscan Center for Services & Advocacy with the Spirit of the Holidays Award!

Thank you to every single volunteer, donor, sponsors, staff members and supports who #UseYourBrains to #EndEpilepsy

EFNENY hosts "Field of Dreams Picnic" at The Joe 

ValleyCats Baseball Game Outing for our Adult Program

"Take me out to the ball game, Take me out with the crowd (of EFNENY)!" The weather held off and gave us a great night of ValleyCat Baseball! The evening started off with a traditional ballpark dinner filled with "Helmbolds" hotdogs and yummy hamburgers. After the picnic, friends and family of Epilepsy Foundation staff and adult consumers cheered on the Cats to a nail-biting 8 to 7 victory over the Hudson Valley Renegades. Hudson Valley scored in six of the game's first seven innings, taking a 7-4 lead into the bottom of the sixth inning. The ValleyCats would then score two runs in the sixth to put the deficit at one as they continued to chip away throughout the night. Everyone left the event with a new souvenir ValleyCats baseball cap on their head and a smile on their face! Vamos Gatos! 

EFNENY Awarded Numerous Grants to Further our Works!

Implementing Signature Programs in Rural, Neglected, and/or Underserved Communities

The purpose of this grant is to provide funding and technical assistance to support local offices in their efforts to increase the number of educational sessions offered to health and paraprofessionals in their identified rural, neglected, and/or underserved communities. Local offices applying for this non-competitive grant must choose one of the aforementioned programs to be implemented in rural, neglected, and/or underserved areas to whom they have not previously provided services.

EFNENY will be using award funding to bring the nationally accredited Seizure Training for School Personnel program to school personnel in the North Country part of our territory by webinar, and conducting a targeted marketing campaign to the school districts encompassed in our target North Country Counties: Jefferson, Lewis, St. Lawrence, Herkimer, Hamilton, Franklin, Clinton, and Essex counties. Funding is provided through the Epilepsy Foundation’s Cooperative Agreement with the Centers for Disease Control and Prevention agreement number NU58DP006256-02-00.

Raising Awareness in Diverse Communities through Outreach to Faith-Based Organizations

The purpose of this grant is to provide funding and technical assistance to support local offices in their efforts to improve knowledge and raise awareness about epilepsy and self-management in Hispanic and African American communities by working with Faith-Based Organizations (FBOs).

EFNENY will target four local FBOs for outreach and offers to provide education to FBO staff/leaders, and then organize an epilepsy awareness/education event for members/consumers of the FBO. Funding is provided through the Epilepsy Foundation’s Cooperative Agreement with the Centers for Disease Control and Prevention agreement number NU58DP006256-02-00.

Increase Education and Awareness Throughout Northeastern New York Grant

EFNENY will once again be increasing awareness of epilepsy during November in recognition of National Epilepsy Awareness Month. This year, you will see commercials on television, hear commercials on the radio, and see our message on transit advertising including CDTA buses and bus shelters. Additionally, we will be producing a variety of new educational materials to increase awareness of our programs and services.  Watch for our new posters in your neurologist’s offices, a new summer camp brochure and a new Winning Kid brochure.  This grant also allowed us to provide a conference earlier this year for school nurses as well as summer camp scholarships, and training for summer camp personnel.  

Employee Wellness Grant 

The Epilepsy Foundation National Office has awarded our affiliate a SHHIP (Staying Happy, Healthy, Informed and Productive) grant to support employee wellness in our office. The grant is designed to engage staff in healthy eating, exercise, stress management, and other activities, and model our commitment to wellness to our constituents.  


EFNENY Representation at the TCS New York City Marathon!

The Epilepsy Foundation of America's Athletes v. Epilepsy program secured 15 entry spots for the upcoming TCS New York City Marathon! One of the prestigious spots belongs to Beth Rice of Voorheesville. The special education teacher not only runs for her students who are affected by epilepsy, but also her son, Hadden, who is now seizure free from the help of EFNENY.

She is almost at her fundraising goal of $3,250.00! Help her get to the finish line! Check HERE for the opportunity to support her efforts and learn more about her incredible story.



March 4, 2018
Confections in Chocolate 










Times Union 
December 14, 2017
Ad space awarded to nonprofits - Capital Region Gives 

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Spectrum News - In Focus with Solomon Syed: Protecting those with epilepsy 

November 29, 2017
Segment 1: Non-medical Medication Switching and Importance of Education

Segment 2: Complications of Non-medical Medication Switching, Explaining State Bill

Segment 3: Explaining NYS SUDEP Legislation 

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Amsterdam Recorder
October 4, 2017
Canajoharie girl to be honored for Epilepsy Foundation fundraising













Times Union 
August 28, 2017
Albany-area epilepsy advocates put teachers on alert for seizures

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Spectrum News
August 17, 2017
Bill would require medical examiners to consider Epilepsy as cause of death

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WKTV - Utica
June 1, 2017
Parents of Little Falls graduate want to raise awareness about Epilepsy

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WKTV - Utica
May 31, 2017
Diamond Dawgs to dedicate home opener to life and memory of Little Falls graduate

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Spectrum News Hudson Valley
May 14, 2017
Walk Raises Money for Epilepsy Programs in Upper Hudson Valley

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The Saratogian - Saratoga
March 25, 2017
A Real Winner: Saratoga Springs kid honored by Epilepsy Foundation

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Spectrum News Capital Region
March 11, 2017
Epilepsy Gala Looks to Raise Funds, Awareness

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WRGB - Albany
March 11, 2017
Gala Raises Funds to Benefit Programs, Services for People with Epilepsy 











Times Union - Albany 

March 6, 2017
Chocolate Fundraiser Returns for 29th Year

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Time Warner Cable News Capital Region
November 21, 2016
Realities, Struggles and Triumphs of Living with Epilepsy Displayed at Schenectady YMCA

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Times Union - Albany
October 21, 2016  
Risk of Sudden Death Greater for People with Epilepsy 

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Times Union - Albany 
September 30, 2016
Golfers Help Epilepsy Foundation 

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Times Union - Albany 
September 12, 2016
Children With Epilepsy See Seizures Stop with High-Fat, Low-Carb Diet 

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Time Warner Cable News Capital Region
September 11, 2016
8th Year of Saratoga Stroll for Epilepsy Raises More Than $60,000