Watch Community Day live, right here.

Live video from portions of the conference will start streaming at the top of the page starting at 8:30 a.m. PT. Before the event, click on the video to go to YouTube and set a reminder.

To connect with others, participate in all of the sessions, and celebrate being together, attend the conference in person. Registration is still possible that day at the conference site.

Your Voice, Your Day

Every two years, the Epilepsy Foundation hosts a one-day educational conference dedicated to people with epilepsy, their families and friends, and community advocates for a day of learning, support, and networking. This year's Community Day will take place on February 24, 2018, at the Westin St. Francis Hotel in San Francisco, California.

Community Day occurs immediately after the Epilepsy Foundation Pipeline Conference. This year's Community Day is hosted with the Epilepsy Foundation and Epilepsy Foundation of Northern California.

Online registration is now closed.

Registration will be available on site, at the conference.

Goals of Epilepsy Foundation Pipeline Community Day

  • Information: Learn about new therapies and wellness approaches and share challenges of living with epilepsy and associated problems.
  • Empowerment: Take control and become an active member of your care team to work toward no seizures!
  • Hope: Understand the importance of research and how you can help.
  • Community: Join friends, families, and advocates for a day of learning, support, and networking.

Social Media

Follow the conference with hashtag #CommunityDay2018

Agenda: February 24, 2018

Times are pacific standard time (PST).

Welcome and Introduction – 8:30-8:40 A.M.

The Epilepsy Experience – 8:40-9:00 A.M.  

Share, listen, and learn through people's lived exeperience with epilepsy.

  • Kerry Youker, patient advocate, Epilepsy Foundation Northern California
  • Steve Kahanic, advocate

The Top 10 Things You Need to Know About Epilepsy – 9:00-9:25 A.M. 

Key concepts and new ideas about epilepsy

  • Christianne N. Heck MD, Keck Medical Center

Progress on New Therapies – 9:25-9:45 A.M.

What's new and what's coming in the epilepsy pipeline

  • Jacqueline French MD, New York University; Chief Scientific Officer of the Epilepsy Foundation

Morning Breakout Classes – 10:00 A.M.-12:00 P.M.

Breakout Class 1: Talk All About It!: Journeys in Epilepsy

Hear about and discuss approaches and updates for treating the first seizures, selecting seizure medicines, and what to do when medicines don't work. Session will be repeated in the afternoon, but with different speakers.

Moderator: Robert Fisher MD, PhD, Stanford Neuroscience Health Center

Panelists:

  • Robert Knowlton MD, University of California-San Francisco (UCSF) Medical Center
  • Maritza Lopez RN, BSN, UCSF Medical Center
  • John Hixson MD, UCSF Medical Center
  • Steven Kahanic, advocate
  • Beth Ruggles, parent advocate, Epilepsy Foundation Northern California

Breakout Class 2: Challenges and Opportunities: When It's More than Just Seizures

Epilepsy affects people in many ways. This session will explore challenges and strategies to enhance management of seizures and emotional health.

Moderator: Kathleen Farrell MD, Epilepsy Foundation

Panelists:

  • John Barry MD, Stanford University Medical Center
  • Karen Parko MD, UCSF Medical Center
  • Jenny LaBaw, Crossfit Trainer; Program Manager for the Epilepsy Foundation Wellness Institute
  • Mike Levin, advocate, cinematographer

Lunch/Exhibits – 12:00-1:15 P.M.

Afternoon Breakout Classes – 1:15-3:15 P.M.

Breakout Class 3: Seizures and Your Life: Emergencies, Alerts, Tools, & Family

  • What's New in Seizure Emergencies and Clusters: Barry E. Gidal PharmD, RPh, University of Wisconsin
  • E-tools and Devices for Recording and Alerting of Seizures: Patricia O. Shafer RN, MN, Epilepsy Foundation
  • Gender and Epilepsy: The Importance of Family Planning: Jeffrey D. Kennedy MD, Juliana R. Melo MD, MSCS, University of California Davis Health
  • Ask the Experts

Breakout Class 4: Talk all About It!: Journeys in Epilepsy – 2:45-3:15 P.M.

This is a repeat of morning Breakout Class 1. Topics will be similar, but will include some different speakers.

Moderator: Nancy Santilli RN, MSN

Panelists:

  • Joseph I. Sirven MD, Mayo Clinic Arizona; epilepsy.com
  • Maritza Lopez RN, BSN, UCSF Medical Center
  • Kimford J. Meador MD, Stanford Neuroscience Health Center
  • Kerry Youker, parent advocate, Epilepsy Foundation Northern California 

Making a Difference: How Can We All Get Involved? – 3:30-4:15  P.M.

Moderator: Jody E. Iorns, Epilepsy Foundation Northern California

Panelists:

  • Jon Scheinman, Community Development, Epilepsy Foundation
  • Kathleen Farrell MB BCh, Clinical Research, Epilepsy Foundation
  • Sonya Dumanis  PhD, Research Innovation, Epilepsy Foundation

Reception – 4:15-5:15  P.M.