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Epilepsy Awareness Management Collaborative

The purpose of the Epilepsy Awareness Management (EAM) Collaborative is to create a structured way for all affiliates to work together as they promote the Foundation’s signature programs, share ideas, resources, strategies and lessons learned and position themselves as the epilepsy experts in their communities.

The EAM Collaborative has been in existence for 5 years. The Managing Students with Seizures: School Nurse Training Programwas the first signature program adopted by the EAM Collaborative. All participating affiliates worked together in structured teams to promote the school nurse program and increase the number of school nurses completing the training either in-person or on-line. The second signature program adopted by the EAM was Seizure Training for School Personnel.

Six affiliate executives were selected to serve as EAM Team Leaders and charged with working with the affiliates assigned to their team on the EAM Collaborative initiative.

The EAM Team Leaders are:

  • Arlene Gorelick, EAM Chair (EF Michigan)
  • Art Taggart (EF Heart of Wisconsin)
  • Donna Stahlhut (EF Texas)
  • Eric Joice (EF New Jersey)
  • Peggy Beem (EF Western/Central Pennsylvania)
  • Karen Egozi (EF Florida)
  • 47 affiliates participated in the EAM Collaborative initiative during the 2014 –2015 program year.

2014 -2015 Program Goals

EAM Team Leader Goal:The EAM Collaborative will continue to build the capacity of the Epilepsy Foundation affiliate network to support the implementation of signature National programs, apply lessons learned to provide education, raise awareness and reduce stigma related to epilepsy.

EAM Affiliate Network Goal 1:Increase the number of persons participating in school-based training programs both in-person & online.

EAM Affiliate Network Goal 2:Maintain previous partnerships and develop new partnerships with agencies able to assist with the incorporation of the training programs into a school system’s annual professional trainings.

Youth Programs

Youth

Peer 2 Peer Education Program

Current Affiliate Grantees

  • Epilepsy of Central & South Texas
  • Epilepsy Foundation of Florida
  • Epilepsy Foundation of Greater Cincinnati & Columbus
  • Epilepsy Foundation of Hawaii
  • Epilepsy Foundation of Kentuckiana

Program Description

The Peer Education Program is:

  • An innovative approach to education, assistance, and enrichment for youth living with or affected by epilepsy.
  • Designed to expand the knowledge of the trained peers, and the ;community in which youth affected by epilepsy live and work.
  • The Peer Education Program was developed by the National Youth Council of the Epilepsy Foundation and is supported by the CDC.
  • Developed in response to a need for a standardized tool for peer to peer education.
  • Provides core curriculum for educating youth about epilepsy and ways to educate their peers.

Goals

  • To provide a platform for youth to educate each other in a tangible manner about epilepsy.
  • To expand the knowledge of youth in the community on what epilepsy is and to decrease the stigma that can be associated
  • with epilepsy.
  • The goal of the Peer Education Program is to fulfill an important need to educate youth in a way that’s tangible for them to educate their peers about epilepsy.
  • Peer 2 Peer Education Program

Highlights

  • Over the last 2 years, the Peer 2 Peer Program has educated more than 80 youth on topics that impact young adults living with epilepsy, such as driving and dating with, seizures and safety and other topics.
  • Participants have themselves become trainers leading the way for a wider knowledge base and more leaders in epilepsy awareness.

Take Charge of the Facts

Program History

Seizures and You: Take Charge of the Facts is an epilepsy awareness program targeting teens and tweens ages 11-18. It is part of a multiyear effort to educate teens and pursue the incorporation of epilepsy education units into school system health education and science curricula. Beginning October 1, 2007, the Seizures and You: Take Charge of the Facts program became self-sustaining. It continues to be our best youth centered educational program at the Epilepsy Foundation.

Goals

  • Demonstrate a basic understanding of epilepsy as a medical condition
  • Identify and learn about different types of seizures
  • Know what to do and what not to do when someone is having a seizure
  • Dispel myths and reduce the perceived stigma associated with epilepsy within the teen population.

Each participating affiliate will be asked to continue to research and identify the steps necessary to promote the permanent or optional inclusion of the Take Charge epilepsy program into health or science curriculum.

Highlights

  • Over the past 2 years 57,809 students have been reached.
  • New promotional material has been designed and disseminated.
  • Provided a robust basis for the creation of the modified Take Charge of the Facts…Flipped! program.

Twenty-20s Epilepsy Awareness Group

Program History

Twenty young adults from the United States of America, Canada, Puerto Rico and Jamaica gathered last year in Washington, D.C. to participate in the “Young Adult Epilepsy Summit.” From the ideas gathered at the meeting, a social media initiative to raise awareness about epilepsy through personal stories of those living with epilepsy as well as those affected by a family member who has epilepsy was developed.

Goals

  • The aim of this social media project is to change the image of people living with epilepsy.
  • To empower and inspire other young adults who have also been affected by epilepsy to pursue their dreams despite adversity.
  • To become leaders in the epilepsy arena through research, social media, and advocacy.

Highlights

  • Creation of a social media platform on Facebook with over 1,360 likes of support to date.
  • The ReMarkable Campaign was created to change the definition of epilepsy by making it positive, adventurous, unafraid, and remarkABLE. The group brought their stories to a video PSA to motivate people around the world.

* The work of the “Twenty-20s” continues as a collaboration between the Canadian Epilepsy Alliance and the Epilepsy Foundation of America with funding from the International Bureau for Epilepsy (IBE).

Take Charge of the Facts...Flipped!

Current Grantees

  • Epilepsy Foundation of Western Ohio
  • Epilepsy Foundation of Kentuckiana
  • Epilepsy Foundation of Central and South Texas
  • Epilepsy Foundation of Florida-Palm Beach Office

Program Description

Through a new partnership with the Force for Health Foundation, the Foundation is providing an innovative web-based way of accessing in-class materials that can be completed within a timeframe assigned by the facilitator. This exciting modernization of Seizures and You: Take Charge of the Facts is one that the Epilepsy Foundation is thrilled to bring to our affiliates. Flipped Learning is an approach in which direct instruction moves from the group learning space to the individual learning space, and the resulting group space is transformed into a dynamic, interactive learning environment.

• The terms “flipped classrooms” and “flipped learning” are also often defined as “school work at home and home work at school.”

Goals

The goals of this program at core are the same as the original Take Charge program:

  • Demonstrate a basic understanding of epilepsy as a medical condition
  • Identify and learn about different types of seizures
  • Know what to do and what not to do when someone is having a seizure
  • Dispel myths and reduce the perceived stigma associated with epilepsy within the teen population.
  • Expose students and teachers to online and interactive program delivery.

Highlights

  • During the first pilot cycle 652 students were reached
  • During the first pilot cycle, 17 schools have been recruited to participate
  • Program materials have been printed and packaged for facilitators. This package includes: a cover letter, a facilitator’s survey, and the facilitator's guide. Student instruction postcards
  • have also been created. All materials are available for grantees.

Seniors & Seizures

Active Seniors

The Seniors and Seizures Training is a continuing education program designed to provide caregivers and staff of adult day care centers, senior centers, long-term facilities, nursing homes, and other senior-serving organizations with strategies to better recognize and respond to seizures among older adults.

Accomplishments

The Seniors and Seizures Training Program has been accredited.

The Epilepsy Foundation is pleased to announce that our Seniors and Seizures Training Program has been fully accredited by the Centers for Disease Control and Prevention (CDC) for Continuing Nursing Education (CNE) and Continuing Education Units (CEU).

As of June 1st, qualifying participants of the Seniors & Seizures training will:

  • Receive a FREE Seniors & Seizures in-person or online training
  • Earn 1.0 continuing nursing education unit (CNE) and 0.1 continuing education unit (CEU)
  • Demonstrate a basic understanding of epilepsy and how it affects the older population
  • Learn tools to identify, recognize and respond to the different types of seizures in older adults

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