RECENT UPDATES

1/2017 - Actor Greg Grunberg Visits The Doctors Show to Share Son's Personal Story with Epilepsy - Greg Grunberg's son Jake began having progressively worse seizures due to epilepsy, he and wife Elizabeth were forced to make a difficult decision. They had to decide if their son should undergo... (More Info) 

11/2016 - Epilepsy Foundation PSA for National Epilepsy Awareness Month - Have a better understanding of what a seizure looks like and know how to perform first aid when someone is having a seizure. #ShareMySeizure (More Info)

11/2016 - Talk About Epilepsy - Hollywood Director J.J. Abrams Encourages Everyone to Understand the Importance of Seizure First Aid and More with the Talk About It Awareness Campaign - www.TalkAboutIt.Org

11/2016 - Who Is Your Epilepsy Hero? - Actor Greg Grunberg Supports #MyEpilepsyHero Online Campaign that Recognizes Important People in the Lives of Those Living with Epilepsy - More Info


RECENT PRESS RELEASES & STATEMENTS

12/07/2018 - Epilepsy Foundation’s Vice President of Research & New Therapies Honored at the American Epilepsy Society Annual Meeting 2018

Epilepsy Epilepsy Foundation’s Vice President of Research & New Therapies, Brandy Fureman, Ph.D., was recently honored with the American Epilepsy Society (AES) 2018 Distinguished Service Award at the AES Annual Meeting in New Orleans.

12/04/2018 - Epilepsy Foundation Issues Statement on Basketball Player Living with Seizures

We have received comments from members of our epilepsy community about the incident that took place during a basketball game Friday night between Cathedral High School and Center Grove High School in Greenwood, Indiana.

12/01/2018 - Statement from Epilepsy Foundation of Indiana on Cathedral Basketball Player Being Taunted for Having Battled Seizures

The media has reported that a student pretended to have a seizure to taunt James while he was at the free-throw line and this resulted in laughs from the crowd. We are outraged that someone in our epilepsy community would be made fun of in this manner. Seizures are not a laughing matter.

11/28/2018 - Epilepsy Foundation of Indiana Enters the Advocacy Arena by Championing Seizure Safe School Legislation

As part of its new advocacy program, the Epilepsy Foundation of Indiana (EFIN) today announced its plans to introduce Seizure Safe School legislation in the state, which would make certain that school personnel -- such as nurses, teachers and volunteers -- are not only prepared, but can recognize and respond appropriately and efficiently to a student experiencing a seizure.

11/28/2018 - Epilepsy Foundation Issues Statement on CMS Proposed Rule that Aims to Lower Prescription Drug Costs, but Weakens Medicare Part D's Six Protected Classes

The Centers for Medicare & Medicaid Services (CMS) released a proposed rule that aims to lower prescription drug costs and costs for consumers within Medicare Parts C and D. The plan contains some policies supported by the Epilepsy Foundation, including prohibiting "gag clauses" so that pharmacists can inform consumers of more affordable ways to get their medications. However, the Foundation is disappointed that the Administration is proposing to weaken Medicare's six protected classes policy, which has longstanding bipartisan support and was designed to ensure that Medicare Part D beneficiaries living with serious conditions, like epilepsy, HIV, mental illness, cancer and organ transplants, have reliable and affordable access to life-changing and life-saving medications.

11/20/2018 - Epilepsy Foundation and Alquemie Product Development Group Partner to End Epilepsy

The Epilepsy Foundation and Alquemie Product Development Group (A.P.D.G), a private label firm and indie cosmetic brand, today announced a partnership to raise awareness about epilepsy, a brain disorder affecting 3.4 million people in the U.S. The partnership includes the sales of a limited-edition, make-up collection created by A.P.D.G. that will raise funds in support of the cause. 

10/31/2018 - Epilepsy Foundation Kicks Off National Epilepsy Awareness Month with Omaze Fundraiser Featuring T-Shirt Designed by Artist Saber

November is National Epilepsy Awareness Month and the Epilepsy Foundation is kicking off a fundraiser in partnership with online fundraising platform, Omaze. The fundraiser includes an exclusive t-shirt, "All Brains Are Beautiful," designed by renowned fine artist SABER in support of the Epilepsy Foundation.

10/18/2018 - Epilepsy Foundation Raises More Than $400,000 at its Second Annual Orange County Care & Cure Gala

The Epilepsy Foundation recently hosted its 2nd Annual Orange County Care & Cure Gala that raised more than $400,000 to fund the implementation and training of a new Pediatric Epilepsy Fellow at Children's Hospital Orange County (CHOC).

10/10/2018 - Epilepsy Foundation Awards $3 Million Grant to International Team of Scientists to Improve Seizure Forecasting

The Epilepsy Foundation announced it has awarded a $3 million grant to an international team of scientists, researchers and interoperability experts to evaluate biosensors that can track an individual’s physiology, behavior, and environment to improve seizure prediction. Team members from King’s College London, Mayo Clinic, and Seer Medical/The University of Melbourne will evaluate biosensors in a range of commercially available devices.

10/01/2018 - Epilepsy Foundation Puts the Brain Front and Center to Rally Everyone to End Epilepsy

Today, the Epilepsy Foundation challenges the nation to recognize the brain as the source of seizures and as the source of the solution to End Epilepsy with the launch of a new action and awareness campaign — “Let’s Use Our Brains to End Epilepsy®.” The dynamic multi-year campaign urges everyone to think about epilepsy and seizures differently. Until now, epilepsy has been very misunderstood, underfunded, and underrecognized, endangering the lives and well-being of the 3.4 million people in the U.S. living with active epilepsy.

9/27/2018 - Epilepsy Foundation Statement on DEA’s Scheduling of Epidiolex® Philip M. Gattone, President and Chief Executive Officer, Epilepsy Foundation

We are pleased to hear that the U.S. Drug Enforcement Administration (DEA) placed Epidiolex® at Schedule V in line with the U.S. Food & Drug Administration’s (FDA) scheduling recommendation. People with epilepsy who are unable to obtain seizure control with existing treatments are at a higher risk of accident, injury, hospitalization, and even death. The DEA’s rescheduling of Epidiolex®, the first ever drug derived from cannabidiol (CBD) approved to treat Dravet and Lennox-Gastaut syndromes (LGS), is a tremendous milestone for some of these most vulnerable individuals who now may have access and hope of gaining better seizure control.

9/19/2018 - Epilepsy Foundation Brings Innovative Solutions to Market

The Epilepsy Foundation today announced a call for entries to its 8th annual competition, where innovators pitch ideas for products, technologies or therapeutic concepts that will directly benefit people living with epilepsy. An initiative of the Foundation’s Epilepsy Therapy Project that was inspired by the television show “Shark Tank,” competition finalists will try to convince a panel of judges and the audience that their idea and business plan is worthy of an investment.

9/10/2018 - Epilepsy Foundation Expands its Reach Beyond the Greater Dayton Region

The Epilepsy Foundation today announced the launch of Epilepsy Foundation Ohio to serve people with epilepsy and their families throughout the entire state. Since 1974, 11 counties in western Ohio were part of the Epilepsy Foundation Greater Dayton Region, known previously as Epilepsy Foundation of Western Ohio. The expansion adds to the Foundation’s existing presence offering epilepsy information and education, as well as programs and services, for those affected by epilepsy statewide.

8/8/2018 - Epilepsy Foundation Announces the Launch of Bicoastal Walk to End Epilepsy and Expansion of Care & Cure Institute beyond California

The Epilepsy Foundation today announced two major initiatives. The Epilepsy Foundation is taking the Walk to End Epilepsy® bicoastal in both Los Angeles and Washington, D.C. and in approximately 20 other cities across the country in 2018 and 2019. In addition, the Foundation is launching the Care & Cure Institute nationwide. These initiatives, which are expanding due to the merging of the Epilepsy Foundation of Greater Los Angeles (EFGLA) and Epilepsy Foundation, will promote stronger awareness and action, as well as enhance programs and resources. Furthermore, the Care & Cure Institute will more thoroughly address gaps in specialty care for many of the 3.4 million people living with epilepsy and their families in communities across the country.

8/3/2018 - Pawn Stars’ Rick Harrison Visits Capitol Hill to Advocate for Epilepsy Programs & Services Funding

Reality TV star Rick Harrison of “Pawn Stars” this week visited Capitol Hill to advocate for more funding for epilepsy programs and services to assist the 3.4 million people with epilepsy in the United States and their families. As a member of the Epilepsy Foundation’s Board of Directors, Harrison highlighted a few of the Foundation’s key initiatives this past year while meeting with key legislators, including a partnership with the U.S. Centers for Disease Control & Prevention to improve access to care for people with epilepsy, expand the Foundation’s digital reach and online resources in homes across our country, and ensure school personnel, first responders, and the public are better trained in recognition of seizures and first aid, in every state.

7/26/2018 - Epilepsy Foundation Celebrates the 28th Anniversary of the Americans with Disabilities Act

The Epilepsy Foundation is proud to join other organizations and individuals across the nation to celebrate the 28th year of the American with Disabilities Act (ADA) which was signed into law by President George H.W. Bush on July 26, 1990 to prohibit discrimination and guarantee the civil rights of people with disabilities. In 2008, then President George W. Bush signed an ADA Amendment Act that restored and protected the rights of people with epilepsy and other disabilities under the ADA as Congress had originally intended. The Epilepsy Foundation served as a leading member of the advocacy team that worked with Congress and business leaders to gain unanimous support for the restoration of the law.

7/2/2018 - Coach Jerry Kill to Host Intercepting Epilepsy Benefit to Raise Funds for the Epilepsy Foundation

Former Southern Illinois University football coach Jerry Kill ("Coach Kill") is hosting the Intercepting Epilepsy Benefit on Saturday, July 14, at the Chicago O'Hare Loews Hotel in Rosemont, IL. The event aims to raise awareness about epilepsy and seizures and raise money for the Epilepsy Foundation's Epilepsy Innovation Institute (Ei2).

6/25/2018 - Epilepsy Foundation Statement from President and CEO Philip Gattone on the U.S. Food & Drug Administration's Approval of EPIDIOLEX®

We are pleased about the U.S. Food & Drug Administration's (FDA) decision to approve EPIDIOLEX® (cannabidiol) oral solution for the treatment of seizures associated with two epilepsy syndromes known as Lennox-Gastaut syndrome and Dravet syndrome in patients two years of age or older. 

6/16/2018 - Epilepsy Foundation Advises Viewer Caution Related to Flashing Lights in 'Incredibles 2' and Asks Disney Pixar to Post a Warning on its Digital Channels

Members of our community have expressed concerns about flashing lights in the new Disney Pixar movie "Incredibles 2," and, in certain instances, people having experienced a seizure during the movie. We stand with our epilepsy warriors and their families as they voice their concerns about the movie and appreciate the efforts some theaters have already made to post warning signs for people waiting to see the movie.

6/14/2018 - Epilepsy Foundation Kicks Off Lemonade for Livy Initiative with Shopko, Encouraging Communities across the Country to Make a Stand against Epilepsy

The Epilepsy Foundation today kicked off its annual Lemonade for Livy initiative at Shopko's Bay Park Square store location in Green Bay with Green Bay Packers Quarterback Brett Hundley, Shopko CEO Russ Steinhorst, and members of the Epilepsy Foundation. The initiative brings people from around the world together to give hope to those with epilepsy and their families. Each year, individuals, families, and businesses host lemonade stands, parties, and events in their local communities to raise epilepsy awareness and support the Epilepsy Foundation's work to stop seizures, find cures, and save lives.

4/18/2018 - Boston Marathon Athlete Attempting to Break the Guinness World Record for the Fastest Marathon Ever Run Backwards Finishes Race in 5 Hours, 43 Minutes, 59 Seconds

Los Angeles native and Disney movie production lawyer, Loren Zitomersky (aka “The Backwards Guy”), attempted to break the Guinness World Record for the fastest marathon ever run — backwards. Despite high winds and heavy rain, Zitomersky ran all of the 26.2 miles of the Boston Marathon backwards and although, he was very close to beating the record, he crossed the finished line in 5 hours, 43 minutes, and 59 seconds.

4/12/2018 - Thousands of People with Epilepsy and their Loved Ones Participate in the 12th Annual National Walk for Epilepsy on the National Mall

The Epilepsy Foundation is hosting its 12th Annual National Walk for Epilepsy on the National Mall with thousands of participants including families, healthcare providers, partners, and celebrities. Rick Harrison from “Pawn Stars”, NFL Quarterback Brett Hundley from the Green Bay Packers, Chef Chris Kyler from “Food Network Star” and Tonya Pointer (aka DJ Nonchalant) joined the Walk as celebrity champions for the cause.

3/20/2018 - 12th Annual Walk for Epilepsy Highlights Importance of Raising Awareness and Opportunities [through Education and Advocacy] and Funding Research to Benefit 3.4 Million Families in the U.S.A. Living with Seizures

The Epilepsy Foundation's 12th Annual National Walk for Epilepsy will be held on April 14th on the National Mall in Washington, D.C.. The event unites families from all over the country to bring much needed support to the 3.4 million Americans living with seizures in the United States. 

3/5/2018 - Epilepsy Foundation Awards $200,000 at 'Shark Tank' Competition for Innovative Products that Aim to Improve Epilepsy Treatment and Care

The Epilepsy Foundation announced the winners of the 2018 Shark Tank Competition for innovative ideas in epilepsy and seizure treatment and care on February 22, 2018, at the 2018 Epilepsy Foundation Pipeline Conference in San Francisco, California. Winners will use the award money to accelerate their product from idea to market in a timeframe that matters for people with epilepsy.

2/15/2018 - Epilepsy Foundation Pipeline Conference to Feature Winners of the SUDEP Challenge on Identifying Biomarkers Predicting Sudden Unexpected Death in Epilepsy (SUDEP)​

The Epilepsy Foundation Pipeline Conference will feature the winners of the SUDEP Institute’s 2nd milestone of its fourth challenge, “Developing Predictive Biomarkers of Epilepsy Seizures.” This is part of the fourth and final challenge, in partnership with InnoCentive, that will ultimately award more than $1 million in prizes.

2/13/2018 - Athletes vs Epilepsy Ambassador and Pro Golfer Jeff Klauk to Host Two Charity Tournaments Benefiting Epilepsy

Don't miss your shot to tee up with professional golfer, Jeff Klauk as he hosts two Athletes vs Epilepsy Million Dollar Shootout golf tournaments this spring. The two events will be hosted at the Palencia Club in St. Augustine, Florida (April 9th) and TPC Potomac at Avenel Farm in Potomac, Maryland (April 30th). 

1/25/2018- Epilepsy Foundation Applauds Passage of Long-term Funding for Children's Health Insurance (CHIP)

On Monday, January 22, 2018, Congress passed and the President signed a continuing resolution that included a six-year reauthorization for the Children’s Health Insurance Program (CHIP). The Epilepsy Foundation applauds congressional action on a multi-year reauthorization that reflects longstanding bipartisan support for this critical program.

11/6/2017 - Epilepsy Foundation Champions Need for Increased Public Knoweldge, Timely Diagnosis and Proper Treatment for 3.4 Million People Living with Active Seizures in the United States

For November, National Epilepsy Awareness Month, the Epilepsy Foundation is raising public awareness of epilepsy and educating people with seizures about the importance of self-management and finding the best treatment as soon as possible.

11/1/2017 - 'My Shot at Epilepsy' Challenge to Raise Awareness for Epilepsy Research

Citizens United for Research in Epilepsy (CURE) and the Epilepsy Foundation are joining forces with a power player in the Broadway community this November to raise critically-needed funding for epilepsy research...read more.

7/10/2017 - Number of People with Epilepsy in the United States at All-time High, CDC Reports

There are more people living with epilepsy in the United States than ever before, according to the new Morbidity and Mortality Weekly Report from the Centers for Disease Control and Prevention (CDC)...read more.

7/27/2017 - Green Bay Packers Quarterback Brett Hundley Becomes Athletes vs Epilepsy Quarterback

The Epilepsy Foundation is proud to announce Green Bay Packers quarterback Brett Hundley is officially an Athletes vs Epilepsy ambassador...learn more.

6/12/2017 - Shopko Named as Kick-Off Partner for Lemonade for Livy to Support Local Epilepsy Foundation

Epilepsy Foundation’s Lemonade for Livy initiative has named national retail chain, Shopko, its official kick-off partner...learn more.

5/13/207 - Epilepsy Foundation Awards $200,00 at 'Shark Tank' Competition for Innovative Products to Help People Living with Seizures

The Epilepsy Foundation announced the winners of the 2017 Shark Tank competition for innovative ideas in epilepsy and seizure treatment and care...learn more

5/15/2017 - Epilepsy Foundation Indiana Hosting Walk to Raise Awareness and Funds for People Living with Epilepsy

On June 3, 2017, Epilepsy Foundation Indiana will host the 2017 Indiana Walk/Run for Epilepsy...read more.

4/13/2017 - Epilepsy Foundation anounces the second Live Stream 'Talk About It for Epilepsy!' Presented by Sunovion Event in Partnership with actor Greg Grunberg and CBS Local

On May 6, 2017, the Epilepsy Foundation and actor/philanthropist Greg Grunberg will host “Talk About It for Epilepsy” Presented by Sunovion, the Foundation’s second online, streaming event...read more

3/25/2017 - The National Walk for Epilepsy Brings Thousands of Supporters to the National Mall to Raise Funds and Awareness for the 3 Million Living with Epilepsy

On Saturday, March 25, 2017, the National Walk for Epilepsy gathered over two thousand supporters for their annual 5K walk focused on finding a cure and raising awareness for epilepsy. The event, which is celebrating its 11th anniversary, was held on the Washington Monument grounds...read more.

9/29/2016 - Epilepsy Foundation Enters a $16 Million Partnership with CDC

Epilepsy Foundation will embark on a five-year cooperative agreement with the federal Centers for Disease Control and Prevention (CDC) to expand epilepsy education and awareness nationwide. This competitive cooperative agreement is part of CDC’s...read more.

9/15/2016Epilepsy Launches #AimForZero Campaign Urging People to Raise Awareness of SUDEP

In response to the urgent need to raise awareness of Sudden Unexpected Death in Epilepsy (SUDEP) among people with epilepsy and their caregivers, the Epilepsy Foundation’s SUDEP Institute today issued a special expert consensus report, #AimForZero: Striving Toward a Future Free from Sudden Unexpected Death in Epilepsy. The new epilepsy.com report is the...read more

9/13/2016 - Epilepsy Foundation Announces New Online Certification Training for Seizure Management

Epilepsy Foundation announces the launch of their new “Seniors and Seizures” online training program designed to provide better care for the older adult population. The program is fully accredited by the Centers for Disease Control and Prevention...read more.

9/7/2016 - Support Epilepsy Foundation at Your Nearest CrossFit Gym

Athletes vs. Epilepsy announces its first CrossFit charity challenge that will celebrate the one year anniversary of CrossFit Games athlete, Jenny LaBaw’s “Move Mountains” run across the state of Colorado for epilepsy awareness. Anyone can participate at home...read more

8/30/2016 - Epilepsy Foundation Secures Prestigious National Accreditation

Epilepsy Foundation is among a select group of organizations to be accredited by the Alliance of Information and Referral Systems (AIRS), in recognition of the quality of information and referral service it provides to the epilepsy community...read more

8/16/2016 - Epilepsy Community Disappointed DEA Won’t Reschedule Cannabis to Improve Access for Research

The epilepsy community, comprised of 3 million Americans living with epilepsy and seizure disorders, their families and caregivers, as well as the health care providers that care for them and the scientists who are searching for new treatments and a cure, eagerly awaited...read more

8/10/2016 - Epilepsy Foundation Announces Final $1 Million Challenge to Identify Biomarkers Predicting Sudden Unexpected Death in Epilepsy (SUDEP)

The Epilepsy Foundation SUDEP Institute announced the winners of its third challenge, “Predictive Biomarkers of Epilepsy Seizures.” This was the third of four challenges that will ultimately award nearly $1.2 million in... read more.

(All Press Releases)

 

 

EPILEPSY FOUNDATION IN THE NEWS

CNN - 5/24/2017 - "Cannabidiol slashes seizures in kids with rare epilepsy, study finds"

Morning Consult - 11/11/2016 - "A Unique Opportunity to Focus on Epilepsy Patients and Innovation"

Epilepsy News Today - 10/17/2016 - "CDC Team Up to Raise Awareness About Epilepsy"

OnPAR - 10/6/2016 - "Leidos Expands OnPAR Membership to Include Epilepsy Foundation"

NewsWise - 9/28/2016 - "World's First Focused Ultrasound Clinical Trial for Epilepsy Begins"

The Daily Caller - 7/29/2016 - "Aussies Will Test Pot on Kids with Drug-Resistant Epilepsy"

Health Day - 7/13/2016 - "Epilepsy May Triple ADHD Risk, Danish Study Finds"

Epoch Times - 7/13/2016 - "Study: For People With Epilepsy, Suicide Rate is 22 Percent Higher"

BuzzFeed - 6/26/2016 - "17 Things Everyone Should Know About Epilepsy"

NewsWatch - 6/10/2016 - "My Seizure Diary"

Newsweek - 5/12/2016 - "We Must Stop Discriminating Against the Seriously Ill"

WTTG Fox 5 DC - 4/16/2016 - LIVE at the 10th Anniversary National Walk for Epilepsy

WJLA ABC News Channel 8 - 3/14/2016 - 10th Anniversary National Walk for Epilepsy

Healthline - 2/2/2016 - "Epilepsy Deaths Have Health Officials Worried"

The Huffington Post - 1/7/2016 - "'Pebble Seizure Detect' is a Brilliant Use for Smartwatches That Could Save Lives"