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We are Here for You

The Epilepsy Foundation and our nationwide network of local organizations are here to help before and after an emergency.

  • Information specialists working our 24/7 Helpline keep in touch with local Epilepsy Foundations and update our database as new resources are identified and created.
  • Call 1-800-332-1000 (en Español 1-866-748-8008) for up-to-date information on services available near you.

Fighting for You

The Epilepsy Foundation is advocating for policies that will ensure people with epilepsy can follow CDC guidelines on social distancing and have the health care and supports they need, including access to essential treatments, paid leave, unemployment benefits, housing and special education given increased virtual learning.

Learn more at advocacy.epilepsy.com/efa/covid-19.

Join the "Speak Up Speak Out!" Advocacy Network.

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Watch Our Facebook Live Series

Facebook Live at Epilepsy Foundation of America
 

Rick Harrison

April 28, 2020

Rick talked about his work with the Epilepsy Foundation as a Board Member and in his home state of Nevada, what it was like for him living with epilepsy as a child, his life now during the COVID-19 crisis, and fun stories from his famous shop and show Pawn Stars.

Watch the recording here.

All About Face Masks and Going Out in Public

April 23, 2020

  • Jeffrey Buchhalter MD, PhD
  • Jacqueline French MD

Watch the recording here.

Talking About It with Greg Grunberg

April 21, 2020

Greg talked with Ken Lowenberg and veiwers about his work helping talk about epilepsy and his movies, TV shows, and everything in between.

Watch the recording here.

Managing Medications in a Crisis Part 2

April 14, 2020

  • Barry Gidal PharmD
  • Patty Osborne Shafer RN, MN

Watch the recording here.

Managing Medications in a Crisis Part 1

April 9, 2020

  • Barry Gidal PharmD
  • Patty Osborne Shafer RN, MN

Watch the recording here.

COVID-19 and the Importance of Research

April 7, 2020

  • Brandy Fureman PhD, Chief Outcomes Officer
  • Jacqueline French MD, Chief Medical and Innovation Officer

Watch the recording here.

Living with Epilepsy During COVID-19

April 2, 2020

  • Liz Dueweke MPH, CHES, Communications & Digital Strategy Manager
  • Alison Kukla MPH, Program Manager

Watch the recording here.

Epilepsy Advocacy During the COVID-19 Crisis

March 31, 2020

  • Brandy Fureman PhD, Chief Outcomes Officer
  • Laura Weidner, Vice President of Government Affairs & Advocacy
  • Rachel Patterson, Senior Director of Government Relations & Advocacy

Watch the recording here.

COVID-19 and Epilepsy

March 26, 2020

  • Patty Osborne Shafer RN, MN, Senior Director Health Information & Resources and Associate Editor epilepsy.com
  • Jacqueline French MD, Chief Medical and Innovation Officer and Research Editor epilepsy.com

Watch the recording here.

COVID-19 and Epilepsy

March 18, 2020

  • Patty Osborne Shafer RN, MN, Senior Director Health Information & Resources and Associate Editor epilepsy.com
  • Jacqueline French MD, Chief Medical and Innovation Officer and Research Editor epilepsy.com
  • Elaine Wirrell MD, Co-Editor-in-Chief of epilepsy.com

Watch the recording here.

Like us on Facebook @EpilepsyFoundationofAmerica.

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Explore Our COVID-19 and Epilepsy Videos on YouTube

Subscribe to the Epilepsy Foundation YouTube channel.

Related Articles

April 7, 2020: “Ketogenic Diets and COVID-19: Is there an interaction?

April 6, 2020: “Sharing Information about COVID-19 with Children and Teens

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Preparing for Any Emergency

Preparing for potential emergencies is part of life for all of us – whether that's for natural disasters, extreme weather conditions, or medical emergencies. This is no different. Here are a few tips to follow now and every day.

  • Remember – Talk to your pharmacist first about creating an emergency supply of prescription medicines.
  • If you will need a new prescription in a few weeks, get it early so you don’t run out.
  • If you have been prescribed a rescue medicine (for example, lorazepam (Ativan), clonazepam (Klonopin), rectal diazepam (Diastat), nasal midazolam (Nayzilam), or nasal diazepam (Valtoco)) to take if you have a change in seizures, talk to your pharmacist about an emergency supply of this medicine too.
  • If you are having trouble with your supply of medicine, contact your pharmacy or call 211 for help. If they are unable to help, let your doctor know as they may need to substitute another medication for a short period.
  • Remember – Keep your seizure action or response plan up-to-date. Keep this in one place along with a list of your medications, important documents, and, if possible, a supply of medication in a watertight bag or container.
  • Keep a phone and any electronic devices charged that you may need for medication reminders and contact with family and emergency response.
  • Keep a pen and paper calendar with you in case there is an extended period without electricity, so you can write down medication reminders or track any seizures.
  • Remember – Check in with family or friends on a regular basis.
  • Talk about any questions or worries – added stress can affect seizures and your emotional well-being.

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More Resources

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We Have More Answers

COVID-19 and Epilepsy

  • What is the coronavirus and COVID-19?
  • Are people with epilepsy at higher risk of developing COVID-19 (coronavirus)?
  • What factors may increase the risk from COVID-19 for a person with epilepsy?
  • Do children get COVID-19 as often as adults?
  • What is autoimmune epilepsy and does it increase my risk for severe COVID-19?
  • What can people do to limit exposure to the coronavirus?
  • What should I do if I think I have COVID-19?

Get the answers.

COVID-19 (Coronavirus) and Seizures

  • Are seizures a symptom of COVID-19?
  • Can seizures increase if a person gets COVID-19?
  • My seizures are worse. What should I do?

Get the answers.

Staying Safe and Avoiding Risks During COVID-19

  • How do I protect myself from getting sick?
  • If COVID-19 is in my community, what should I do?
  • When should I wear a mask and what kind is best?
  • Are there certain activities or places I should avoid if I have epilepsy?
  • Can COVID-19 increase the risk of sudden unexpected death in epilepsy or SUDEP in a person with epilepsy?
  • Can people with epilepsy donate blood?

Get the answers.

Managing Epilepsy During COVID-19

  • How can I stay on top of managing my seizures?
  • How can I manage my stress and worry?
  • How do I stay in touch with my health care team?
  • When should I go to an emergency room for seizures?
  • My child is being evaluated for epilepsy surgery. Will it be canceled?

Get the answers.

Testing and Treatment: COVID-19 and Epilepsy

  • What testing is available to tell if I have COVID-19?
  • What is an antibody test and when should a person get this done?
  • Does the use of seizure medicines increase the risk of coronavirus infection?
  • Do any of the medicines being tried to treat COVID-19 interact with seizure medicines?
  • How can I get more medicine if my health care provider prescribes it? Will it be covered by my insurance?
  • What if I have other questions about insurance coverage related to COVID-19 testing or treatment?
  • Are there shortages in seizure medicines in the United States?

Get the answers.

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Authored By: 
Patty Osborne Shafer RN, MN
Judy Gretsch
Authored Date: 
05/2020
Reviewed By: 
Elaine Wirrell MD
Jacqueline French MD
Laura Weidner
Judy Gretsch
on: 
Wednesday, May 13, 2020