As a bold unwavering ally, the Epilepsy Foundation is here to help people living with seizures dare to live to their fullest potential. Our mission is to stop seizures and SUDEP, find a cure, and overcome the challenges created by epilepsy through efforts including education, advocacy, and research to accelerate ideas into therapies.
While each person with seizures and epilepsy is different, many of the steps along the journey toward a life with no seizures and no side effects are similar.
Depending on the type of epilepsy, other neurological problems, and other factors, some people may find it hard to get complete seizure freedom. But DO NOT STOP TRYING!
We are constantly learning more about how to better diagnose, treat, predict, prevent, and care for seizures and epilepsy. And ultimately, with your help, we will find a cure.
The Journey Toward Seizure Control:
- When a Seizure is Suspected
- Creating Your Health Care Team
- At the Beginning of Your Treatment Journey
- When Seizures Persist or Side Effects are a Problem
- Managing Your Epilepsy
- Finding Help and Support
#DareTo Go the Distance
Wherever you are in your journey, we encourage you to explore all of these steps.
- If you are still having seizures but consider them a "manageable" part of your life, don’t stop there. Don’t settle for continued seizures!
- Find out if other tests are needed to check your diagnosis.
- Ask about new treatment options. If the first 2 or 3 medicines haven’t worked, ask to see an epilepsy specialist, called an epileptologist (this is a neurologist who specializes in epilepsy).
- If you have been or currently are being seen at an epilepsy center, ask for a progress report from your team.
- Are there new options or research trials to consider?
- If seizures have changed, does testing need to be updated?
- What else can you do to improve your life and health?
Video Moderator: Patty Osborne Shafer RN, MN, is an epilepsy clinical nurse specialist at the Comprehensive Epilepsy Center, Beth Israel Deaconess Medical Center in Boston, and the associate editor and community manager of epilepsy.com.
- Nathan Fountain MD is a professor of neurology and director of the Comprehensive Epilepsy Program at the University of Virginia and chair of the Epilepsy Foundation’s Professional Advisory Board
- Sandra Dewar RN, MS, is a clinical nurse specialist at the Seizure Disorders Center at University of California in Los Angeles.
Ask questions. Become an active advocate for your health care.
- Enlist the help of your family, friends, and your entire medical team.
- Add to your medical team by seeing an epileptologist.
- Look at how epilepsy is affecting your health and daily life. If other problems are present, ask to see other members of the epilepsy team.
- Consider if you are taking all the steps you can to manage your seizures and the side effects of the medications. What can you do to help?
- Ask for help.