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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

Topic: Women With Epilepsy

Created By: Joannarturner | 01/2019 | 1 Comment

My name is Rose and I'm new to the forum. Has anyone been successful applying and being approved for disability? I am going through the process right now. Its very stressful and any advice or...

Created By: NewlyDiagnosed | 01/2019 | 2 Comments

I was diagnosed with epilepsy 2 months ago. No prior symptoms, just 3 seizures and an abnormal EEG.
In this same year alone, 2 of my female friends aged 24 have also been diagnosed with...

Created By: Kate11 | 12/2018 | 2 Comments

Hi ladies,
I have been on Trileptal for about 17 years. I started when I was about 15. My husband and I are going to try getting pregnant but I was wondering if anyone had any issues or if...

Created By: AlexandraGail | 12/2018 | 7 Comments

Hi everyone! I am currently on 3,000 mg of keppra and 400 mg of Lamictal daily I’m 5 months pregnant and was wondering if there were any women with similar doses who delivered. I’m curious as to...

Created By: irwin2ka | 12/2018 | 0 Comments

Hi everyone! I finally have become more comfortable and also curious if there are others out there who have possible had a similar experience as mine...

In January of 2014 I was diagnosed...

Created By: NeuroscienceLife | 12/2018 | 3 Comments

Hi All, I am new to this site, my Doctor recently contacted me about considering epilepsy surgery where they would remove part of my temporal lobe on my left side. She also said there are some...

Created By: percephone18 | 10/2018 | 1 Comment

So.. I was diagnosed with epilepsy at 16yo. Around 25-26, I went about 3 years without an episode. Seemed pretty well controlled. I moved, had a baby, and now suddenly they're back only...

Created By: Kregsims | 10/2018 | 3 Comments

My fiancé the love of my life the mom to my amazing daughters (age 1 and 2) for the last year has been having random seziures first one was a surprise one the 37 years she’s been alive she’s never...

Created By: KableCawyer | 10/2018 | 0 Comments

Hey everyone, I just signed up online here, but I always read discussions that have been very helpful for me.
I have a 4 year old daughter and I was officially diagnosed with TLE while she...

Created By: heymonymony | 10/2018 | 0 Comments

Has anybody ever been to UCLA's epilepsy center? I went there for an appt and look at this flickering light they had in the hallway! I couldn't believe it. It was like this for two...

Created By: kierstan82 | 10/2018 | 2 Comments

Hi ladies! I'm new to this, I stated my story in the main chat but thought this may be a better fit so here goes...

I have suffered from severe migraines and blackouts since I was 14...

Created By: deedee88 | 09/2018 | 0 Comments

Hi ladies!! This is my first post ever! I really need some help! I have seen many discussions about how lamictal can decrease the effectiveness of birth control, or increase the hormone levels. My...

Created By: Believer_59cd4d81a99cf | 09/2018 | 2 Comments

Hi ladies of the epi site, I'm hoping for some insight or shared experience. Im a 21 year old female and I don't usually spot between periods, but after a grand mal seizure this week I...

Created By: leisa106 | 09/2018 | 1 Comment

I believe God would make you fertile when he pleases. I am so happy to say this. I have suffered from infertility for 6 years of my marriage. I have gone to so many therapy, taken so many...

Created By: Nikki Lauren | 09/2018 | 2 Comments

Hi, i'm Nikki, i'm 19, ive had Juvenile Myoclonic epilepsy since the age of 14, i have been diagnosed with PCOS so i have no periods and i am on Sodium valporate ( epilim) and as i am...

Created By: Analeah | 09/2018 | 5 Comments

I am currently 23 weeks pregnant and am on Lamical and Briviact. I take 200mg of Briviact each day. I know there have been no studies on the effect of pregnancy while taking Briviact, aside from...

Created By: ngjaslyn | 09/2018 | 2 Comments

Hi,

I'm a 29 year old woman from Singapore. Diagnosed with JME since 13 years old (2001). Was on epilim 300mg day and night. Seizure/ jerk free since 2004.

Fiance and I plan to...

Created By: Zeke1216 | 08/2018 | 0 Comments

Hello , my wife just found out she’s pregnant and wanted to know if anyone here has gone through a pregnancy while on both keppra and zonegram . She is currently taking 750mg keppra twice a day...

Created By: Sarah_Henderson | 08/2018 | 6 Comments

I was diagnosed with Petit Mal Seizures in Kindergarten and I am currently 24. I have been on Depakote for a long time (most recent dose was 500mg ER once daily. My husband and I are wanting to...

Created By: Dianehpark0 | 08/2018 | 4 Comments

I’ve been having seizures for a while now, but I don’t know anything about nocturnal. Last night, I experienced a massive headache that was intense, had a nosebleed, hurt my head (a small bruise/...

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