Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

Topic: Women With Epilepsy

Created By: caz2015 | 07/2019 | 2 Comments

Hello ! I have Temporal lobe epilepsy , complex partial seizures, im 34. During the day ( as long as i take my meds) I am seizure free. I have lived alone since my epilepsy diagnosis 3 years ago,...

Created By: MsWill723 | 07/2019 | 6 Comments

Whats going on Epilepsy family!
Guys my life has been completely changed and its depressing! I am a radio personality, producer, artist developer, I consider myself the hip hop Oprah. I...

Created By: herronad | 06/2019 | 2 Comments

I am 31 and currently on 400mg of Vimpat and 600mg of lamictal. My husband and I are wanting to conceive. My 1st pregnancy was great, my daughter is 7 and has no birth defects, however, I was not...

Created By: Claresouthall | 06/2019 | 2 Comments

Last week I was in theatre (I’m a student midwife) when I started to feel faint. I started jerking and felt as if I was going to have a seizure so sat on the floor. I then had a focal seizure that...

Created By: dreambeauty | 06/2019 | 1 Comment

Hello, My name is Kiernan.
When I was 9 years old I was diagnosed with Epilepsy, my Epilepsy is a battle I fight everyday because my seizures are not 100% controlled. I am currently 18 years...

Created By: Mpoon | 06/2019 | 1 Comment

I wanted to hear from people about their experiences. I am on 3000mg of Keppra and 30mg of clobazam daily and am trying to get pregnant. I will not be changing my medications... Had brain surgery...

Created By: dexterav1 | 06/2019 | 1 Comment

MEXICALI, B.C. MEXICO 26 OF MAY 2019.

To: The Epilepsy Foundation, American Epilepsy Society, Canadian Epilepsy Alliance, Citizens United for Research in Epilepsy, Gene Reviews and...

Created By: Pepe’s Mama | 06/2019 | 2 Comments

I never had a seizure in my life until two years after my partial hysterectomy and now I have them every 6-12 weeks. I used to only have them in my sleep but now I have them also while awake for...

Created By: vanessa5 | 05/2019 | 1 Comment

Good Morning,
Some women with refractory (focal) epilepsy who have implanted the contraceptive implant in the arm (implanon)

Created By: LoriNorris | 05/2019 | 3 Comments

Hi, everyone I'm Lorraine and I also have epilepsy. I was diagnosed with epilepsy as a child and have multiple different seizures. Recently, my husband gave me the idea that I should share my...

Created By: Fran1979 | 05/2019 | 3 Comments

Hi all I have been breastfeeding our 13 day old newborn and am on levetiracetam 3000mg a day and clonazepam .25 mg a day. We had to introduce formula at every feed as she was losing weight. Since...

Created By: Sacha | 04/2019 | 0 Comments

I have successfully treated perimenopausal insomnia until recently with circadian and bio identical progesterone. However it has become worse recently as has the night sweats. As insomnia is a...

Created By: cc40 | 04/2019 | 5 Comments

My question is, has anyone noticed seizures coming back or more frequent the older they get? I am asking here because obviously women's hormones and body changes as they get older. I was...

Created By: CryoMango | 03/2019 | 5 Comments

I know this isn't a relationship help forum, but I need some advice from people who have used Keppra.

So my partner was diagnosed with epilepsy in late 2018, just out the blue she...

Created By: ester_5c7c7b97ddcbf | 03/2019 | 0 Comments

Hi, I am a mum of an almost 6 year old boy. He was exposed to Valproic acid (800mg) during my pregnancy. He has been showing some behavioural issues for the past three years such as being...

Created By: Chyanna | 02/2019 | 2 Comments

I put my story in the comments cause it’s wouldn’t let me type that much lol please read and give me recommendations, advice, opinions! Anything!

Created By: kmduke | 02/2019 | 2 Comments

Hey Everyone,

I'm new to this page, I apologize if this is long. I have not been diagnosed with Epilepsy, however I do have a unique story.

I started having seizures the week...

Created By: tsw5 | 02/2019 | 1 Comment

Hi guys, i've recently found out that I was pregnant (we weren't planning to have a child for a few years) and i'm a little bit spooked. Both my doctor and neurologist were very...

Created By: NeuroscienceLife | 02/2019 | 1 Comment

Hi, I live in the Pittsburgh, PA area and was wondering if anyone would be either willing to talk for awhile through emails that would be understanding of what I am going through and would also...

Created By: novachick | 02/2019 | 3 Comments

Hey Ladies,

Does anyone know of a support group in the Los Angeles area? Or are there any ladies that are in the area? With so many different social network apps I never seem to find ladies...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline
P