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Unexplained additional symptoms with segmental myoclonus diagnosis

Hi, I've experienced myoclonic jerks and minor absences since 1992 without an epilepsy diagnosis and without taking medication and until recently it hasn't given me much cause for concern. In the last year my myoclonic jerks have become more frequent and violent and instances of biting my tongue in my sleep have increased. I've started having periods of dizziness over the last 6 months and two weeks ago had my first experience of sudden vertigo whilst seated which was followed by a 30 second absence seizure and immediately after a large myoclonic jerk. I was quite dazed and disconnected for about 30 mins after as well. I've noticed dips in my mood following jerks and also increasing instances of feeling like a jerk is "stuck" at the back of my neck. I've got an appointment with my GP to ask for a referral back to neurology but I'm wondering if anyone on here has experienced these sorts of symptoms before. I'm also photosensitive and have found more and more frequencies of flashing lights and now some fluorescent lighting have been triggering tics than they ever have before. If anyone has experience of these symptoms I'd like to know as I feel quite isolated and unsure of how to go about getting support for what are becoming more and more intrusive symptoms and not knowing if they're something to worry about.

Comments

Seizures will get more

Seizures will get more frequent and stronger unless they are treated. I was having focal seizures that affected my right hand giving it a weird feeling for a few seconds. when at school I was being written up for day dreaming in class. They increased in number and lasted longer until I had my first grand mal seizure.When you ask for the referral please ask that the neurologist be a specialist in epilepsy.I feel quite isolated and unsure of how to go about getting support for what are becoming more and more intrusive symptoms and not knowing if they're something to worry about. <<If you had treated this like a person does with their blood pressure then you might not have been having many of these seizures because mediations have been out to stop seizures for way to long. Would you have waited over 20 years if it was blood pressure since that can cause a heart attack??

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