The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Triggers

Tue, 12/10/2019 - 16:21
I have been on a new medication for ALMOST two years. I was doing great, the last episode was 12/11/2017. I suffered one "blackout" yesterday. I was feeling uncomfortable while in the car with a back window open and the loud throbbing noise was quite loud. Could this have provoked the episode? I had eaten, medication was taken, my routine was the same except for that LOUD throbbing sound, I'm so disappointed.

Comments

Hi, Thank you for posting. We

Submitted by Anonymous on Tue, 2019-12-10 - 16:48
Hi, Thank you for posting. We understand it can be really frustrating and upsetting to have a seizure after not having one for almost two years. We cannot determine if this loud throbbing noise you describe contributed to your seizure or not. It’s important that you’re following-up with your healthcare team to discuss this most recent episode you experienced further, and if you continue to experience changes in seizure frequency, types, behaviors, moods and symptoms, to determine what individual treatment plan is best for you. You may want to consider keeping a journal or a diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking seizures, setting reminders, managing medications & side effects, setting reminders, recording medical history, moods, behaviors, triggers, and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. By tracking your seizures overtime, you may be able to recognize a pattern, allowing you to modify your behavior or lifestyle appropriately. To learn more about the importance of tracking your seizures, visit:  https://www.epilepsy.com/learn/managing-your-epilepsy/tracking-my-seizures/importance-tracking-seizuresAdditionally, you may always contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

I have been on several

Submitted by folken on Sat, 2020-02-22 - 17:51
I have been on several medications and some of them change the character and presentation of my seizures. These weird changes include having long (10+ minute) blackouts. That's one of the telltale signs for me, because I do not naturally have long blackouts with my daytime seizures. So, I mean, a medication *can* do that. If that's what caused your blackout, of course I can't know. Also, I have heard of people having auditory triggers.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.