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Seizures

Mon, 08/14/2017 - 19:13
Hello. I have had grand mal seizures since 2005 when I was 25 years old. Most of my seizures occur during the early evenings between 5pm-7pm. I have had a total of 40 seizures since then. I have about 1-2 seizures per year lately. There has been rare occasions where it happened one time during the early morning. and one time at noon time. Most of my seizures occur when I'm close to having my period, or just a few days after my period. I do have an aura 10 minutes prior to a grand mal seizure. I have had grand mal seizures since 2005, but my last 2 seizures (October 2016, july 2017) were only partial seizures where I am conscious, and no body shaking, just heavy breathing and stares. so it does seem like my seizures are getting better. I have been placed on progesterone therapy since late 2016. Does anybody have this type of seizures too? can anybody give me advice on how to totally eradicate these seizures? thank you.

Comments

Sorry, long story but I don’t

Submitted by Trillian on Sat, 2017-09-30 - 16:53
Sorry, long story but I don’t know how else to explain! I was diagnosed with complex partial seizures ages 17, but probably had them most of my life. I went to uni, and was always told I couldn’t have oestrogen contraceptives because of my seizures. When progesterone implants first came out, ages about 20, I had one and I always suspected that’s why my seizures stopped, but my dr’s said I’d just grown out of them. Aged 33, thinking of starting a family I had the implant removed after taking advice from an obstetric neurologist who said I’d be fine.... and three weeks later I had the first of a long line of tonic clonic seizures. The neurologist where I live doesn’t believe in catamenial epilepsy, even though every seizure I had was exactly 14 days (and only ever then) before my completely irregular periods. Long fight, new neurologist, and I have a diagnosis type two catamenial epilepsy, generalised seizures, so I have seizures when I ovulate, as a result of a flood of lh hormone. I wish I could just put the implant back in and not take anticonvulsants, but if I want a family that’s not an option. Good luck and I hope it works as well for you as it accidentally did for me!

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