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New to this diagnosis and just need friends
Sun, 06/18/2017 - 01:19Topic: Women With Epilepsy
I was just diagnosed with temporal lobe epilepsy and I'm still trying to adjust and accept it. Some days I feel as though I'm living in a state of early dementia. Although I am married I do not have is support and actually it is the complete opposite where he uses it against me to make me feel worthless. I am strong or atleast I try to be but inside I am dying and no longer feeling like the me that I once was. I'm seeking out friends or peers or just somebody that might be able to help me get through this because I find myself sliding deeper into depression. I'm only on here because I feel that I'm running out of options and out of people that truly care or understand so if you are out there just know you would be a complete blessing and possibly savior to my life. I'm at the end of my rope and I don't know what else there is for me.
Comments
Hi, I'm new here also. I just
Submitted by innerfire on Fri, 2017-06-23 - 12:09
Hi, I'm new here also. I just saw a new neurologist yesterday, a doctor who (sort of) listened but I didn't have to argue for anything, she ordered an EEG and MRI after getting a history and doing some cns tests in the office. They got to witness my facial spasms (another lovely new side effect), word salad and memory lapses as well. I tried to tell her some symptoms I've been having and she kind of dismissed it but said it all sounded like seizure symptoms, but then said if the EEG came back normal that we'd just be treating migraines. I am not having "just" migraines, I've had migraines for 30 years and what I'm experiencing is more than "just" migraines. But every time I have tried to get help for this (everything I research is pointing to complex partial/focal epilepsy), it's usually ignored. I'm scheduled for the tests next week, but I'm nervous that nothing will show up and that they'll keep ignoring what's going on. The fact that my speech, face, and memory are being affected is not helping :/ Just looking to connect with others and not feel so alone in this, as right now I am a bit freaked out.
Hi Nikki, you're definitely
Submitted by ArthurS on Sun, 2017-07-02 - 05:43
Hi Nikki, you're definitely not alone. Please be strong and just know that there is 0% benefit in giving up. Just connect on here and you'll feel better!
Yes I agree. In my heart I
Submitted by Nikkicole85 on Sun, 2017-06-18 - 21:04
Yes I agree. In my heart I know how selfish it is of him but I think i allow it because now more than ever i really depend on him. My license is currently suspended because I suffer from blackout spells that come on randomly so now I can't drive and depend on him to take me to most appointments unless he is in a mood and then he will make me miss it altogether or Im scrounging money for an uber or taxi. Its hard going from being so independent to having to ask for help with the simple things. Not to mention not being able to drive sucks all on it's own. I've been on so many meds and they still have not found a way to control them so I'm just existing in between episodes. Can I ask why you're not able to get in until so late. August feels so far away? How are you dealing?