Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
My Story
Tue, 06/25/2019 - 20:26Topic: Women With Epilepsy
Hello, My name is Kiernan.
When I was 9 years old I was diagnosed with Epilepsy, my Epilepsy is a battle I fight everyday because my seizures are not 100% controlled. I am currently 18 years old and my seizures are more violent and destructive then they have ever been before. Along with my Epilepsy, I have a blood condition called Hemochromatosis. Epilepsy and Hemochromatosis have had a huge impact on my life and they have caused me to have Depression along with Severe Anxiety.
Hi dreambeauty, Thanks so
Submitted by Anonymous on Wed, 2019-06-26 - 09:21
Hi dreambeauty, Thanks so much for posting. It’s important that you continue follow-up with your healthcare team to express your concerns and discuss your feelings of depression and severe anxiety, as well as, side effects, seizure types, changes in behaviors and symptoms. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdfSometimes it's helpful to connect with other people who live with, or care for those with epilepsy, to ask questions, share experiences, find & give support to each other, by contacting your local Epilepsy Foundation at: epilepsy.com/localsupport, to find support groups, events, and programs in your community. Additionally our Epilepsy andSeizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org , epilepsy.com/helpline , can assist in connecting you to resources, provide referrals and additional support.