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JME -Withdrawing Keppra
Sun, 06/24/2018 - 19:23Topic: Women With Epilepsy
I was diagnosed with JME back in 2013 when i was 15 years old. Since then i am on keppra 1500mg per day, and i am seizure free.
My neurologists , said that because i am 5 years seizure free , we can try withdrawing keppra. We started slowly and from now on till september i will be taking 1250 mg per day , and after that 1000 mg per day.
I want to ask , if someone has a similar story and if after withdrawing keppra have been seizure free.
Thank you :)
Comments
Neurologists wean people off
Submitted by just_joe on Tue, 2018-06-26 - 17:42
Neurologists wean people off medications slowly. Some can come completely get off meds and can go on with their lives without seizures. Others can but if they have a seizure they are put back on meds at the lowest dose they were taking before the last dose was removed. My cousin was the latter. She had a seizure after about 3 weeks once the therapeutic levels had all left her body.
Prognosis is more specific to
Submitted by Amy Jo on Mon, 2018-06-25 - 05:21
Prognosis is more specific to the type of epilepsy than the medication you’ll come off of. This one says things probably get better in later decades...https://www.epilepsy.com/learn/types-epilepsy-syndromes/juvenile-myoclonic-epilepsyThis is a hopeful characterization but the percentage of people seizure free off meds after weaning is likely lower than some other epilepsies. They identify patients with absence as a different outlook...https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4038283/