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Help diagnose me
Fri, 09/13/2019 - 07:36Topic: Women With Epilepsy
Hi all, I was wondering if any of you share the same experience/ symptoms as me. So far I have not been able to figure out what is happening to me. So I do this thing where it looks like i'm completely conscious and that nothing has changed but I will say something weird or it just doesn't make sense with the conversation i'm having. And when someone ask me about it a few minute later I will have no memory of having a conversation or saying anything at all. This has been happening for about 3 years now and i'm not sure how often because someone has to be there to witness it and then ask me about it. an example would be that just last week I was in lecture sitting between my two friends and the teacher was explaining something and I had said something along the lines of "that is so gross" and when when my friends questioned me about it I had given a simply response of "the parallels" and then when my friend asked me what I was talking about I asked him "about what" and then my other friend who knows that I do this asked "did you just have an episode" and I guess I looked at her funny and went back to paying attention to lecture. And then they asked me about it about 10 minutes later and I had no idea what they were talking about and had no recollection of talking during class. This has happened to me at restaurants with my family, at work, and even while I was driving with a friend, she said I was completely aware of my surroundings and even stopped at a stop light! My older sister is in med school right now and she thinks its seizures but I cannot find a single thing that is related to it online. So I ask, what the heck is wrong with me? Does anyone else have the same problem that I'm having?? Or does anyone have another explanation for it, I am desperate!
Comments
Sounds very similar to the
Submitted by birdman on Fri, 2019-09-13 - 10:05
Sounds very similar to the seizures that I have. I don't make any comments unless asked a question, but he experience of being at one point, then miss a section, and then be at another point is so mind boggling. In my latest episode my mother was driving me to an appointment in another town. We were on the highway as I recognized we were close to the town and the exit we needed to take. Next I was in a waiting room and a man was waiving me to come in. I didn't recognize him but quickly assumed I was in for a visit and this was the person I was seeing. I also quickly recognized my confusion and knew I had a seizure. We talked for a bit but it was hard for me to remember anything and to make good sense in my conversation.After the visit I got into the car with mom and asked, "When did it happen?" She was confused for a few seconds. I told her I remember being on the highway and then being in the doctor office; nothing in between. Then mom said while she was driving I was dangling something in front of the air vent. She asked me if I was having a seizure and I said no. I remember nothing of this. The name for this type of seizure used to be "complex partial seizure" but today they refer to them as "focal seizures with impaired awareness". It may seem shocking to many that there can be a seizure without falling down and convulsing which is what happens when seizures happen in a large part of the brain. But it is very common to have seizures in part of the brain or "partial" seizures. They happen at a spot that can be pinpointed hence the name "focal" seizure. And if they happen in the region responsible for managing memory and language (temporal lobe) you may forget what happened and have symptoms involving speech.Mike
Hi isabelle.winters@rockets
Submitted by Anonymous on Fri, 2019-09-13 - 09:23
Hi isabelle.winters@rockets.utoledo.edu , Thanks so much for posting, we understand this can be very scary and confusing to experience. We cannot determine if you’ve had seizures, or not. It's very important that you continue to follow-up with your healthcare team to describe these episodes you’ve been experiencing. Additionally, it’s important that you discuss these changes in your memory, as well as, any changes in moods, behaviors, sides effects & symptoms, to determine what individual treatment plan is best for you. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdfFor assistance and information regarding finding a specialist, or a second opinion please visit:https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist www.naec-epilepsy.org Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors'visits, and how to take control of seizures.Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy For additional information about seizures & diagnosing epilepsy please visit these links: https://www.epilepsy.com/learn/about-epilepsy-basics/facts-about-seizures-and-epilepsyhttps://www.epilepsy.com/learn/diagnosing-epilepsy Additionally, you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline