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Having an issue I could use help with

Fri, 03/30/2018 - 15:19
Ok, I'm new here. I'm pretty scared right now with something I'm experiencing and am looking for feedback. I'm 40. I've had seizures since I was 16 due to head trauma. I've always sometimes had auras before the seizures. The original auras consisted I'd just an icky, paranoid feeling and I didn't want to be alone. Kinda like that "impending sense of Doom" feeling some people describe. That lasted for a few years, then the auras were just tastes in my mouth. Now just 2 days ago I started having something weird happen. It started out with me feeling like I've stopped breathing and woke up out of breath. I've also been having very unpleasant dreams. And it's not so much the dreams, it's the.....icky feeling after it that lingers. It reminded me of those "impending sense of Doom" feelings I used to get. Just weird and scary. Some people might think I'm crazy. I've read today about a correlation between nightmares and seizures and about some kind of "sleep seizure". I've only had partial complex and absence seizures. But these weird feelings are scaring the heck outta me. My mind goes to things like brain tumors and such. I also have NF since I was about 2. I've only ever had birth marks from it, but a lot of people in support groups said they never got tumors til in their 40s. Now that really bothers me. I've made another appointment. But in the meantime, can you guys give me any feedback about what's going on. I promise I'm not crazy. I don't think so anyway. Thanks

Comments

Hi! Have you only ever had

Submitted by sibbo84 on Mon, 2018-04-09 - 16:27
Hi! Have you only ever had simple/complex partials? Reason I ask is that I only have simple partials and mine are a lot like hours. I get the feeling of doom, really anxious, hot and bothered, sometimes get a heat rash. Sometimes I get pins and needles in my hands too and a really tight chest. I also get epigastric riding and a phantom smell. Mine all in all last about 1 hour until u start to feel normal again, I just feel like I’m in a dream and not real! I don’t get the strange dreams but I do get other things while sleeping. I’ll be shocked out of my sleep by not being able to breath, or I’ll be trying to move and be paralysed. I’ll ask have jerks/spasms when falling off. It leaves me feeling like death after, tired and soooo an anxious! I know I’ve not been much help but I thought it may help to know that your not alone. I understand why you are panicking but seizures come in sooooo many forms. S x

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