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Endometriosis, IUD, and Epilepsy
Wed, 04/25/2018 - 13:33Topic: Women With Epilepsy
Hi All,
I've had epilepsy since I was 16 (I'm 28 now), and I was recently diagnosed with endometriosis. I went in to the doctor because I was having pain and thought it was associated to my PCOS, and they found endo instead/as well.
My question is two-fold.
1) Women with epilepsy have to be very careful with hormonal BC, it can cause breakthrough seizures, and the epilepsy meds can decrease the effectiveness of the BC, however this is one of the best treatments for endo- did anyone have any experience with trying a hormonal treatment?
2) I was looking at getting a copper IUD to avoid the hormonal aspect so that I could have a form of birth control, have women with endo had a copper IUD and how did that go? There have been *mixed* reviews, but most of the women can turn to other options that women with epilepsy don't always have the option to do, so the advice of "go to Mirena" isn't necessarily helpful.
Thanks!
EW
Hi! I have endometriosis and
Submitted by sagesc1 on Wed, 2018-05-09 - 19:47
Hi! I have endometriosis and epilepsy. I’m on Quasense for hormonal therapy, therefore my lamictal was increased post surgery to keep from any breakthrough seizures. Luckily I did not need a hysterectomy. My cysts were the size of grapefruit. My pain has disappeared, but if I go off Quasense I will need a hysterectomy. I had an IUD 2 years prior to my endometriosis. It was a bad idea. It was very difficult to remove, tissue started to envelop it. I am 43 and have had seizures for 30 yrs. I had my endometriosis surgery 11 yrs ago. Best wishes.