Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

Living wjth seizures

In 2005 i was struck by a roadside bomb in Iraq while in the marines. I lost consciousness for while and had some memory issues after. Mood changed but cognitive function was normal. Post war i delt with slight dizziness, numbness, trembling hands, headaches.

The VA diagnosed me with. TBI and i delt with symptoms because they were minimal occurrences and manageable. About 2 years later they got worse. By 5 years later i kept symptoms in secrets. And finally by 7 years later i began getting loopy spacy feelings, but no loss of consciousness. Symptoms progressed and i thought it was anxiety due to lack of sleep with family and kids. However i ended up being diagnosed with seizures ad now diagnosed with epilepsy.

I began on 250 mg 2x a day on keppra. Within a year i moved up to 500 2x daily. Now 4 yrs later i take 2500 mg daily and 300 mg of lamictal.

Seems like after a episode of get chronic episodes lf anxiety post ictal seizure. The anxiety will last for days and i start having multiple seizures in that time which keep bringing on anxiety and panic attacks.

Every time this happens my neurologist increases meds and i feel better for months until i relapse.

I am wondering if anyone has similar symptoms and issues. I am fully able to work but concerned where this condition is gonna take me. I am open to trying any new trial study procedure if it rids this.


The medicinal properties of

The medicinal properties of THC also help to reduce the frequency and severity of seizures in individuals suffering from epilepsy. Visit this, the use of THC completely eliminated seizure activity altogether.

This is similar to my story.

This is similar to my story. The big difference between us is that I never had a TBI. I am also an OEF/OIF veteran and went through 18+ months of awful PTSD and extreme anxiety after my discharge. I couldn't leave my apartment, man. I couldn't interact with people without throwing up. I didn't even have the courage to walk my dog except for when I knew there'd be nobody to talk to. I didn't even know this was PTSD, that's how ignorant I was. It wasn't until like 8 years later when I met a rape survivor who shared her story with me and described her PTSD that it finally clicked.My seizures started right before discharge. Seizures, migraines, and vertigo. Like a parting gift from the military. Like you, I didn't know they were seizures because I hadn't had a grand mal yet. They were just these confusing moments of brief dementia or blackouts. This was back in 2008 and they have gradually gotten worse over the years. Medications have done little to nothing (or worse) for me, unfortunately. I've tried 8 or 9 of them. The ketogenic diet does help me achieve seizure-free periods as long as 5 to 8 weeks (rare) but I average like 10 days to 2 weeks between seizures now, which is miraculous for me. And when they breakthrough, they breakthrough in clusters, just like yours. If I have one, I normally have anywhere from 7 to 8 of them. Very rarely, does only one happen. And then for the next several days, I'll have fewer and fewer until I don't have one during the day.If I may offer some advice. You mentioned sleep. I have extreme sleep apnea on top of epilepsy. Obstructive and central. If you haven't had a sleep study, ask about one. They aren't fun, but it could identify stress your brain is under at night. It might also help you learn if you're having seizures at night, too. (I should qualify that my "5 to 8 weeks" are regarding daytime seizures only. I have night ones a lot.) Consider the diet. It's not fun and it's expensive, but it could be life changing for you too. Just know, knocking yourself out of ketosis can come with a seizure price.

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

24/7 helpline