Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

My story

Hello my name is Nicole, I'm from Ecuador I'm 16 years old, since I was 6 years old I have suffered from this disease. It's a little hard to me, because is not a common disease around my friends and sometimes I feel weird but this website is amazing, I feel so comfortable reading about the storys and is so important to me, learn a little more about my disease.❤


I live in Michigan in the

I live in Michigan in the United States.  I live in a pretty rural area which is nice but there is little support available if I want to meet others who share the struggles I have with epilepsy.  It is quite lonely.  Like you expressed it is nice to have a website to visit and share.My perception of Ecuador is of a rural habitat.  Is this accurate?  I assume your "disease" is epilepsy?  What kind of treatment is available for you?  Keep reading and researching.  I hope others can share your enthusiastic understanding of what you discover.  Are you sure it is not a common disease?  If you can find a comfortable way to open up and tell about it you may find others who are shy about telling about it.

Just remember Nicole,

Just remember Nicole, Epilepsy is not a disease its a disorder. Yeah it may suck, but it makes you unique. I was diagnosed when I was 4 years old, I am now 15. So I know what its like growing up and feeling different. Just remember to stay strong!

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

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