Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
My story
Thu, 04/26/2018 - 21:11Topic: Teens Speak Up!
Hello my name is Nicole, I'm from Ecuador I'm 16 years old, since I was 6 years old I have suffered from this disease. It's a little hard to me, because is not a common disease around my friends and sometimes I feel weird but this website is amazing, I feel so comfortable reading about the storys and is so important to me, learn a little more about my disease.❤
Comments
Just remember Nicole,
Submitted by chaworth on Sun, 2019-06-09 - 11:24
Just remember Nicole, Epilepsy is not a disease its a disorder. Yeah it may suck, but it makes you unique. I was diagnosed when I was 4 years old, I am now 15. So I know what its like growing up and feeling different. Just remember to stay strong!
I live in Michigan in the
Submitted by birdman on Thu, 2018-04-26 - 21:45
I live in Michigan in the United States. I live in a pretty rural area which is nice but there is little support available if I want to meet others who share the struggles I have with epilepsy. It is quite lonely. Like you expressed it is nice to have a website to visit and share.My perception of Ecuador is of a rural habitat. Is this accurate? I assume your "disease" is epilepsy? What kind of treatment is available for you? Keep reading and researching. I hope others can share your enthusiastic understanding of what you discover. Are you sure it is not a common disease? If you can find a comfortable way to open up and tell about it you may find others who are shy about telling about it.