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Community Forum

A place for Teens Speak Up! alumni and parents to share their stories and stay connected. 

Topic: Teens Speak Up!

Created By: Emma Morton | 05/2019 | 5 Comments

My name's Emma and I had my first ever seizure (tonic-clonic) last September at TAFE (a type of practical college in Australia).
Since then i've had two more tonic...

Created By: LIZK | 05/2019 | 2 Comments

HI Everyone, My daughter was just diagnosed with this yesterday. Her seizures are not even seen by the naked eye but has a lot of seizure activity based on her EEG. Her Doctor prescribed 1000 mg...

Created By: LovesOldiesMusic | 01/2019 | 0 Comments

Hi Everyone who is reading this, my name is Meg I’ve had epilepsy since I was 3 when I was young I use to stare into space, choke on food and then when I was done would sleep for hrs. As I got...

Created By: MariaNeedsYouHelpNow | 11/2018 | 0 Comments

I want to educate more people about Epilepsy and tell them my story but I don't know where to start, how can I educate more people about Epilepsy?

Created By: MariaNeedsYouHelpNow | 11/2018 | 1 Comment

This is how I feel with Epilepsy (Seizures) in my life!!!!!!!!!!!
Not Normal
A Freak
A loser
A baby (because there people who wants...

Created By: Allisonrunnergirl_5a3c6155d8ea8 | 09/2018 | 2 Comments

Hi so basically I am having these cluster seziures. For anyone who does not know it means I am having 5+ seziures in 2-3 hours. This is causing me to miss a lot of school. However we are working...

Created By: madisontittle | 05/2018 | 0 Comments

2 years ago I was diagnosed with cancer, 1 year ago insomnia put me in the hospital for 25 days, 2 days ago I was diagnosed with epilepsy after almost dying from a seizure. I knew cancer would...

Created By: NicoleMolina1001 | 04/2018 | 2 Comments

Hello my name is Nicole, I'm from Ecuador I'm 16 years old, since I was 6 years old I have suffered from this disease. It's a little hard to me, because is not a common disease...

Created By: Allisonrunnergirl_5a3c6155d8ea8 | 03/2018 | 1 Comment

Hi so this is a bit complicated so I’m going to try and sum it up. One day I took all my seziure medications (like always) but then I had a small seziure at school and I thought it was nothing...

Created By: Allisonrunnergirl | 09/2017 | 2 Comments

Hello my name isAllison I was diagnosed with epilepsy at birth but I did not have any seziures (other than little staring ones as a baby) until I was 10 and 11years old when I had 2 a Grand Mall...

Created By: Aleisha__Grace | 07/2017 | 6 Comments

Hey to anyone who actually reads this, I'm Aleisha, I'm 16 and in Grade 12. I have a million things wrong with me. They have been trying to figure out me epilepsy for 3 years now, and...

Created By: zuntijohn | 03/2017 | 1 Comment

Hello Everyone
As of the last month, I have been experiencing odd symptoms that I think may be a brain lesion.
I have little to no appetite
I have very frequent head rushes and...

Created By: hibsadam | 08/2016 | 1 Comment

hello everyone,
I'm not really sure how to begin this because I'm so confused. but let me try and sum it up without sounding too confusing.
the first time this happened to me...

Created By: Strugglingtochasemydreams | 06/2016 | 1 Comment

Hi guys, I am 18 years old and have controlled epilepsy and have been seizure free for a year by taking medication. Unfortunately, just having this condition has been nothing but a hindrance to...

Created By: dua | 09/2015 | 2 Comments

Hi,discuss your problems here.This group is for teens only.

Created By: RachelSproule | 04/2015 | 2 Comments

Hey everyone I just recently started a campaign called Making A Difference focused on topics such as
mental health issues
and many...

Created By: MSullivan9 | 08/2014 | 0 Comments


I'm a Girl Scout in the Washington, DC area and for my Girl Scout Gold Award Project, I'm sponsoring a free spa day for teen girls with epilepsy and other illnesses.  This event will...

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