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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

Topic: Teen Zone

Created By: Allisonrunnergirl_5a3c6155d8ea8 | 11/2018 | 0 Comments

Hi I am going to try and summarize this new seziure I just had so basically The computer screensaver is a beach I am on the beach I can see the waves crashing see the strong wind but I can’t feel...

Created By: Sisterlooking4support | 11/2018 | 4 Comments

My name is Mel I am 27. I have a sister who just turned 19. She has been suffering with epilepsy since she was about 5 years old. It has progressed along the years. From multiple seizures in a day...

Created By: Gk63 | 10/2018 | 1 Comment

So I'm 16 living with TLE and patit maul epilepsy and my parents really don't understand how fatiuged I can actually get and how hard it gets to move and think I have tried explaining...

Created By: Dani96 | 10/2018 | 2 Comments

Hello, my name is Dani and I’m 22 and I’m new to the site. I live with my parents,but they’re always busy and can’t really come help me. When I have a seizure I fall to the ground and start...

Created By: Cami4 | 10/2018 | 0 Comments

I have had epilepsy since 8th grade and I am a senior in high school. I have tried multiple medications for my seizures and frankly I am giving up hope. My seizures cause my right eye to twitch,...

Created By: bmcnamara562 | 09/2018 | 0 Comments

Hey, I am 17 and I am a teen with epilepsy living in New Jersey and I'm creating a video about the awareness of teens with epilepsy (daily life, extra curriculars, schooling) for a Girl Scout...

Created By: emiliakudelko | 08/2018 | 1 Comment

I’m 16 years old. I haven’t had a seizure in a year. I’m on Vimpat and Kepra. All my friends around me use the e cigarette Juul. I’ve used it a couple times. How bad is the cross of Nicotine and...

Created By: sarahbethsummers | 08/2018 | 0 Comments

Seminar in Nashville on Sept. 15 for students on doing college with epilepsy!
Details/Register online: studentswithepilepsy.com

Created By: bsuggars | 06/2018 | 2 Comments

Is there any team groups in the Southern California region?

Created By: M011Y | 06/2018 | 2 Comments

Hi I’m 12, but I’m going to turn 13 in 12 days. I’ve been having seizures since I was a baby. My parents said my first seizure was when I was 6 months old. I’ve been living with it since then....

Created By: AHarmon | 04/2018 | 5 Comments

Hello. I am 12, and I have absence seizures. I have had these for two years. I was wondering if someone older than me would tell me some stuff about what it's like to live with these when you...

Created By: AshleyCO17 | 04/2018 | 2 Comments

Hello everyone, my name is Ashley. I was diagnosed with epilepsy about 6 months ago and I have been having some trouble processing everything. Does anyone have any suggestions to help? I am also a...

Created By: marajm | 04/2018 | 2 Comments

Hi there! I'm a daughter of long line of people with epilepsy in my family, including my brother and father. I'm actually here to ask a question about my 18yr old boyfriend.

When...

Created By: Allisonrunnergirl_5a3c6155d8ea8 | 03/2018 | 3 Comments

Hello I am going to a doctors appointment tomorow to see if I can get laser therapy to get rid of my epilepsy. I know I should be really excited but I’m really scared and nervous I’m only 14. Any...

New
Created By: Cheer_Emily1 | 02/2018 | 2 Comments

Hey everyone! Along with being new to epilepsy I am new to the whole chatting online thing and I was wondering if anyone would like me to start a snapchat so we could chat on there?

Created By: Shiznizbiz12 | 02/2018 | 2 Comments

My boyfriend that is 18 years old has been having tonic clonic seizures for the past few months now. From what we know of he has had 5 of them in the past 5 months. Today was the first time I was...

Created By: ashley62 | 12/2017 | 0 Comments

I have had epilepsy for a year now. I am struggling with it because it has gotten worse over the months and i have been suffering tonic clonic seizures and absence seizures. i get almost 10-15...

Created By: iwh62 | 12/2017 | 0 Comments

My daughter was diagnosed 6-1/2 years ago with TLE at the age of 10. She started her menses at age 14, but was never regular. We kept mentioning it to her pediatrician yet were continually told,...

Created By: Iosif77 | 11/2017 | 2 Comments

I have a son who will be 16 soon, and he want his own car. What kinds of insurance policies are there for minors and how is does it work? he does not want to do anything, so you have to solve all...

Created By: itsdavid_12 | 11/2017 | 1 Comment

Hey my name is David and I am 18 years old and I have been diagnosed with gran mild seizures for over a year now. My most recent one was perhaps the scariest. Me and my friends decided to take a...

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