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New, I need help explaining.

Topic: 

So I'm gonna go ahead and consider myself still a teen since I'm only 18. 

I have very bad epilepsy, focal and generalized and it's genetic. My half-brother has epilepsy as well. I have absense, atonic, tonic-clonic, and partial seizures. I was living with my parents because I cannot live on my own. It's very hard for others around me, I've grown used to it which is sad but I mean most of us do, you know. I was averaging 20-30 sometimes 40 a day of the smaller ones, with 2 or three TC's a month, usually one a week. On August 15th, I attempted suicide , and ended up in the psych unit, that lasted for 22 days. They let me out on the 5th of September. I went back home to live with my parents who are verbally abusive narcissists and it got bad again. On the 10th of Semptember I was suicidal again after my parents kicked me out telling me they could not handle my issues, so they hospitalized me again until the 14th when they sent me home with my grandmother. I am now on 175mg of Lamictal twice a day, 50mg of Topamax three times a day, and 500mg of Keppra twice a day and am only having 2 seizures a day at most. I have not had a TC since August 25th, so in my view at this time I am doing a lot better. I am now living with my grandparents who are clueless about my epilepsy. I did my best to explain my epilepsy to them, I showed them videos of what my types of seizures look like, explained how to take care of me with great detail, I did all I knew to do. My grandmother is a legitimate hypochondriac, so when I had an atonic seizure four days ago at a restaurant and ended up dumping a plate of food on me, afterwards she began looking up things online. She is now trying to force me to change my diet and lifestyle because she thinks that's what's causing my seizures. As all of you know, epilepsy is not a one-size-fits-all thing. She can't just look up "why is my grand-daughter having seizures" and think it's going to answer all of life's greatest questions, because it's not going to. And my epilepsy is a bad case anyways, so none of that is going to apply to me. 

How do I explain this? Have any of you been in a situation similar? Do you have any suggestions of what I can do that might ease my grandparents' mind, because they are really freaking out about my epilepsy. I'm doing a lot better now than I was though. 

:/ I just don't know what to do right now. I feel so alone. I have no friends with epilepsy, so I have no one to ask. 

Thanks in advance.

Destiny

Comments

Maybe you need to take your

Maybe you need to take your grandmother with you to a neurologist and they can explain it to her. 

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