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Living With Epilepsy

Topic: 

It's a struggle isn’t it? To be pulled away and lose control of yourself. I'm 15 and have complex Partial Seizures. January 24th, 2012 was when I had my first (known) seizure. I was on a field trip with my school. My class and I were listening to a speaker about endangered birds and out of nowhere I stood up and shouted to the person next to me, “We do not tell lies some people hate more than others” and did some weird jerk movement with my arm. (Just to add this is based on what I heard because I have no recollection of this event whatsoever)

          My friends told me later that day when we were eating dinner (because it was an overnight field trip). At first I thought I was like getting punk’d. Until I talked to my teachers about it because so much of my friends where telling me the same thing. And sure enough they told me the same thing. I was in shock, a deep dread came upon me. I then went back to the table I was eating at and full on started balling I didn’t care who was watching. I couldn’t comprehend what just happened to me. I don’t think any of us (epileptics) could comprehend what happened to us on our first seizure.

          So far after 2 years my epilepsy has only gotten worse and severely affected my social life, brain, and life in general. I plan to add on more to this letter.

Please write back I need to know someone has read this letter. 

Comments

My first known seizure was

My first known seizure was different since it was a grand mal seizure. What I was told by friends and teachers was that I had pulled my arms inside my jacket. I then walked over the 3 benches stacked on top of each other. I climbed on top of them. I then stood up, pulled my jacket over my head then fell face first onto the asphult basketball court. All I remember was being cold and pulling my arms into my jack. The next thing was being carried into the nurses office by 4 varsity foolball players and a coach at each end of my body. Oh and yes it is strange having a seizure you know nothing about. I was put om meds and adjustments were made and the meds reduced the number of seizures I was having since I had grand mal, petite mal and focal motor epilepsy. I had been written up for day dreaming in class, Those day dreams wer absence seizures (petite mal) The wierd feelings in my right had was focal seizures and if the two of them compined were added together I had been having 2-4 seizures a week for about 2 years

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