Hi,
I am a research and in my free-time I am working on developing a device that could detect seizures in kids and alert the parents so that the parents can make sure their kid is safe. We...
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Hi,
I am a research and in my free-time I am working on developing a device that could detect seizures in kids and alert the parents so that the parents can make sure their kid is safe. We...
Hi guys my name is Roman, I could not find much information about the laser surgery. So I decided to explain as much as I could and should be easier understanding I made this video for info/...
Hello all. I am currently at 1 year and 2 days since brain surgery. This was a long year of medicine experiments to cure epilepsy. Until Dec 7th I was on various meds and struggled deeply with...
I am 48 years old and was diagnosed with temporal lobe epilepsy when I was 21. I have complex partial seizures that are not under control. Seizures are deja' vu feeling and then extreme...
Has anyone here tried the RNS? My neurologist is recommending the RNS, not the VNS. He believes it is more effective but, it seems like a new machine so I'm not sure what to think of it. Anyone...
Hello,
I was looking into purchasing either the SmartWatch or Embrace seizure alert. Is one better than the other? What have been your experiences with wearable seizure monitors?
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Has anyone had any experience with VNS therapy for seizures ? I'm considering having it done, but would like to know more. Any info would be appreciated. Thanks.
I don't know if this is going to help anyone but I had EMU Phase 2 then a laser ablation on my right temporal lobe during the week of Thanksgiving. So far it has been successful but it's only been...
Hi everyone,
I'm a 23 y/o female who has had partial complex seizures for nearly 20 years. My pediatric neuro just referred me to an adult neuro after I've started suffering side effects...
I had a right temporal lobectomy performed at the Cleveland Clinic in 2013. Has anyone had surgery from that amazing place?
I am 36 and live in NZ. I have had epilepsy for about 15 years and have been on 6 of different meds over that period with many "cocktail" combinations of them (epilem, tegratol, topamax, lamictal...
Has anyone had temporal lobe surgery at kaiser in Redwood a City? If yes, how did it go?
Has anyone had temporal lobe surgery at Kaiser in Redwood City, CA. If so, could you share your experience? Thanks!
Hi everyone, I am having a left anterior temporal lobectomy later this month, and I would love to hear stories from those of you who have had this same surgery......I am keeping my fingers and...
Hi everyone, I am having a left anterior temporal lobectomy later this month, and I would love to hear stories from those of you who have had this same surgery......I am keeping my fingers and...
I've had epilepsy since 2007. It appeared totally out of the blue with no obvious cause. I was married, had a young son, a career and living a really full and...
Hi everyone. I'm new to the site and wanted to get some advice from any parents that have had VNS done for a younger child.
My daughter is 6 and has just been put on a 3rd medication to...
Hi, I have struggled with epilepsy since a teen and thinking of taking the leap to epilepsy surgery at my doctor's urging. Where are the best places to do it if you could go anywhere? Live in...
The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
