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Community Forum

Topic: Surgery and Devices

Created By: peterochs_59cee179c53de | 10/2017 | 2 Comments

me: monthly tonic-clonics which led to left temporal lobe surgery, i.e. brain removal - it has had me totally freaked out since, because I look back and seem not even sure of the reason for the...

VNS
Created By: Schmidle | 10/2017 | 3 Comments

I just recently had a vns put in for my epilepsy. It all happened very fast after I made the decision to have it put in. They just squeezed me in their schedule because the surgeon was booked so...

Created By: cinderellastoryscene13 | 09/2017 | 2 Comments

My Dad has epilepsy and has recently moved in with me as I have realized that his memory loss makes it unsafe for him to live alone. He had a surgery (sometime in the 90’s…I don’t know...

Created By: garcia_59bdc154538f0 | 09/2017 | 28 Comments

Hello everyone. I am a masters student attending Arizona State University. I'm currently working on a project related to the VNS and RNS devices. I am searching for caregivers or users who...

Created By: Iraviking | 09/2017 | 1 Comment

My 15 years old son has severe epilepsy. He is severely developmentally delayed (no speech, and communication difficulties) He has around 3-10 seizures per day(atonic, tonic, myoclonic and more)....

Created By: DebinCA | 09/2017 | 1 Comment

My husband is in the midst of getting intercranial EEG monitoring to more precisely pinpoint the start of his seizures. The electrodes were placed 6 days ago - and so far, no seizures. He's...

Created By: yardwok | 09/2017 | 3 Comments

I was told this week that I have now been seizure free for one year and I can drive once again!..I am ecstatic!..I had the RNS implant and it has been working with perfection for me. I had...

Created By: kattatstrophe | 08/2017 | 2 Comments

Hi everyone!

I just wanted to share that I recently underwent a stereotactic laser ablation of the left mesial temporal lobe for left mesial temporal schlerosis (which sounds scary as can...

Created By: Swa28 | 08/2017 | 6 Comments

I had surgery to remove a lesion in my right temporal lobe 1 month ago in July 2017 and now have double vision. The surgeon said it would go away but could not say when. Did this happen to anyone...

Created By: Ryan's Mom | 07/2017 | 3 Comments

Has anyone had either of these surgeries? My son, 25 y/o has had intractable seizures since he was 11 after surviving viral encephalitis. Has had VNS since 12 which helped tremendously, and...

Created By: Elizabeth204 | 07/2017 | 2 Comments

Hi everyone,

I've had epilepsy for over a year and the medications that I have tried do not work, or don't work very well (I've had 11 seizures and am on my 4th medication)....

Created By: Ginger1984 | 07/2017 | 2 Comments

Hello,
I had brain surgery to install the NeuroPace device April 5th. Since then my grand mals have gone from once every month to ever 2 two months to having one every 2 weeks! My doctor...

Created By: Ksbabysweet82 | 07/2017 | 2 Comments

On May 19th the father of my children passed away due to a seizure he had surgery on March 21st to get vns to help with his seizure but it didn't do anything because he no longer is with us....

Created By: Spellbound | 07/2017 | 5 Comments

I have had epilepsy all my life (almost 40 years). As of right now, it is relatively under control via medication and a VNS. For a variety reasons I have been depressed lately. I know that...

Created By: Broooke denver | 06/2017 | 2 Comments

I am getting a VNS in August and I keep having people ask me if I tried Marijuana. I'm so excited, I've taken 6 different meds in my lifetime and finally no new drugs. But all these...

Created By: Epilepsyuser24 | 06/2017 | 6 Comments

So I'm about to get this double brain surgery which is when they put grids on my brain in the first one and make me seize with it on and then find the spot they want to take out and take them...

Created By: Micci | 06/2017 | 1 Comment

I am now to the foundation and it looks there is a wealth of information here.
I am being faced with surgery to remove two lesions in my brain. I met with my neurologist yesterday. She said...

Created By: kcounts0630 | 06/2017 | 0 Comments

Yesterday I started physical therapy due to severe lower back pain. My neuro recommended the physical therapy. His theory is less pain reduction in seizures. I have a vns but failed to remember...

Created By: Ejhinton114 | 05/2017 | 6 Comments

My neurologist suggested having a Laser Ablation Surgery & I am looking for someone who has had or knows someone that underwent this procedure. Any information will be helpful &...

Created By: Laureen | 05/2017 | 0 Comments

We have been offered the possibility of getting a partial resection of the Corpus Callosum surgery for our 15 year old. I would like to hear of your experiences with this surgery, if it has...

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