Hello all,
I am Ronnie, from India. Have been seizure free since last 10 years but with medications twice a day. I read success stories of people who had surgery and got well. Is surgery...
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Hello all,
I am Ronnie, from India. Have been seizure free since last 10 years but with medications twice a day. I read success stories of people who had surgery and got well. Is surgery...
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https://www.gofundme.com/f/please-...
I am 40 years old and have right temporal lobe epilepsy due to a small malformation in my right hippocampus. My neurologist and neurosurgeon think I should do the surgery because medication has...
anybody have laser ablation and had health insurance that covered procedure if not completely to some extent. im having a hard time finding any insurance company willing to cover procedure
Hi everyone,
I am going to be evaluated for resection/laser ablation or RNS implantation. The first step will be the intracranial EEG. From the MEG test that was done, there seems to be...
Hi!
I was diagnosed with epilepsy at the age of 11 (for 12 years now), and see a need for a product to manage seizures that occur in a public place, i.e. away from care-takers and...
Hi I'm almost 21 and have been living with epilepsy since I was 9. I've been an extremely active human being ever since I can remember, I had a VNS (vagus nerve stimulator) put in when I...
My epilepsy specialist and my neurologist have both been introducing me to the idea of a vagus nerve simulator since they have a 99% success rate with it. Although they have said I need one yet...
I had an VNS implant carried out in 2010 . But in 2015 I moved to Malta where they don't have VNS implant program and since the battery ran out over a year ago, I have developed severe...
My boyfriend had a Left Anterior Temporal Lobectomy 2/27/19 for cluster seizures brought on from an untreated TBI. Since then, he has had severe headaches/head pains near surgery site and the...
Just found these & thought I'd share. Can add info with the full name of implant & says no mri no DIATHERMY.
https://www.americanmedical-id.com/checkout/cart/
...
Hi, I'm trying to get an idea of the surgeon cost for a temporal lobectomy in a private hospital. My health fund covers the hospital.
Going to see him in a couple of weeks but just...
Not looking for medical advice, as I am calling Dr in morning.
I had my device implanted 1/23/19. Tonight I stretched really big & felt a pop. I waited for it to go off again ( every...
So, I had VNS surgery about a week and a half ago and every time it goes off it feels like my throat is tightening and there is a pain where the nerve is. Does this ever go away or lessen or does...
Hello. I am 42 years old and i have right temporal lobe epilepsy. I have exhausted all the medication changes that are worth dealing with. Now with only a 5% chance of any medications working,...
My doctor has given me 4 options for surgery for intractable epilepsy. Additional resection, I had prior partial TL resection & will not have another as 1 foci is near hippocampus.
... I’ve had to do 2 surgeries before and now they’re considering a 3rd. If it doesn’t look good then they’ll do a VNS or RNS. Would a 3rd be too many?
Hello,
I'm new to this forum and am hoping to get some answers or find someone who has had a similar experience as my family and I are grasping at straws to find out what is wrong with...
I have Left Temporal Lobe Epilepsy. Heterotopia (or so-called grey matter) is in my left temporal lobe and is where my seizures' emanate from, as well as blocking seizures' precise foci...
Good morning everyone, my name is Lisa. I had left temporal lobe surgery 5 weeks ago. I haven’t had any seizures since then thank God but , my doctor said I still can’t bend over and the only...
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