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Video EEG/Right Temporal Lobe Resection?

Thu, 12/31/2015 - 02:59

Hi everyone,

I'm a 23 y/o female who has had partial complex seizures for nearly 20 years. My pediatric neuro just referred me to an adult neuro after I've started suffering side effects with meds, no matter which ones we try. The new neuro wants to do surgery, which is something that I never really thought about, because I only have seizures every few years--I'll have 3-4 in a few months, but then not have any more for about four years--but he told me that that's just as bad as someone who has them everyday because they're still technically uncontrolled. I'm having a 4 day video EEG at the hospital next week, where they hope to induce seizures to tell them where exactly the seizures are coming from. He thinks it's the temporal lobe, and if he's right, he wants me to consider a resection surgery.

I'm terrified of the potential risks of the surgery, does anyone else have experience with this? Also, can anyone give me insight into their video EEG experience/purposely induced seizures?

Comments

I am having Left Temporal

Submitted by pfincher on Tue, 2016-01-05 - 17:23
I am having Left Temporal Lobe resection on Feb. 8. I had the option back in 2012 but decided not to at the time.  After spending more time researching and talking to others that have had it I have decided to go for it.  As others have said do your research and if you decide to do it make sure you go to a facility that does many of these and has an experienced epilepsy neurosurgeon.  Good luck.   

I am having Left Temporal

Submitted by pfincher on Tue, 2016-01-05 - 17:23
I am having Left Temporal Lobe resection on Feb. 8. I had the option back in 2012 but decided not to at the time.  After spending more time researching and talking to others that have had it I have decided to go for it.  As others have said do your research and if you decide to do it make sure you go to a facility that does many of these and has an experienced epilepsy neurosurgeon.  Good luck.   

I am having Left Temporal

Submitted by pfincher on Tue, 2016-01-05 - 17:23
I am having Left Temporal Lobe resection on Feb. 8. I had the option back in 2012 but decided not to at the time.  After spending more time researching and talking to others that have had it I have decided to go for it.  As others have said do your research and if you decide to do it make sure you go to a facility that does many of these and has an experienced epilepsy neurosurgeon.  Good luck.   

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