Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Upcoming VNS Surgery for my daughter
Tue, 06/09/2015 - 18:25Hello, this is my first post. My 18 year old daughter will be getting a VNS device in August. We're concerned about side effects and if this will really help her. Does anyone have any thoughts to offer us? Thank you.
Hi, I'm 21 and I got VNS
Submitted by Ragamuffinchild on Wed, 2015-06-24 - 16:55
Hi, I'm 21 and I got VNS transplant just last month. Each time I get it turned up, that day I will get a pain shoot through my jaw. Not unbearable. It only lasts for just the first day and then my body gets used to it. I rarely even notice when it goes off at this point. I mostly only notice it if I am speaking because it makes my voice hoarse. Since it is new I don't know yet if it will help me though I've met two people that have had it. One said it didn't work for him, the other said it changed her life. The more I read the more it really looks like a case-to-case basis on whether it works or not. I hope it goes well for her!