Brain surgery

I have been through surgery twice.The first was in 2000.I had depth electrodes instead of grids.I went through the testing for almost 2 weeks.After I had enough seizures to give docs all the info they needed,I was taken to surgery.A part of my right temporal lobe was removed.I was seizure free for almost 3 yrs.The seizures were not occurring as often as before the surgery.I tried more new meds which didn't help.I had the second lot of surgery in 2006.This time it was grid monitoring.The monitoring was for a week this time. I was then taken back to surgery.A part of my right temporal lobe was removed again.I have only had a few auras since the 2006 op.Most of the auras were occuring in the first 3 yrs after the surgery.In that time the auras were getting weaker and occuring less frequently until they eventually stopped.2 yrs ago, I stopped one of the meds under my neurologists instructions.I had 2 strong auras.I started the med again.I have not had any auras since.   If you decide to go through with the surgery,expect to have quite a few strong headaches.I found the worst of the pain was in the first few days of the monitoring.The pain was well controlled with pain killer when I told nurse about headaches.The worst of it was over after the first few days.After that, I only had weak headaches,but nowhere as strong or as often as the first 3 or 4 days.

I have had 5 surgeries for my epilepsy. The first was a VNS in 2010. It didn't work. The second was a Selective Amygdalohippocampectomy in the left temporal lobe in October 2015. I was seizure free until June 2016. I started having tonic clonic and complex partials every 5-7 days. Then in May 2017 i was taken in for a bilateral intracranial eeg. They used grids and 6 depth electrodes in both temporal and frontal lobes. Over two weeks, I had 14 seizures, 11 from the right temporal and 3 from the left temporal. Then June 1st 2017, they removed the electrodes and did a complete left temporal lobectomy, including the hippocampus and amygdala. They also open the right side and removed the electrodes. I was told they can't do a resection on the right because its the only functioning side now, and the risks and effects would be too dangerous. As far as the intracranial eeg, other than the surgeries to implant and remove the electrodes, it is very similar to a regular video eeg. The main difference is that you will be kept in the ICU for the whole time.

You are all braver than me.  My family hassled me about surgery for the longest time.  Eventually I went in to the hospital for a week of external monitoring.  After the monitoring they discovered I am not eligible for surgery.  The way I see it I only have one brain. If they are going to mess around with it I want a guarantee that I will be seizure-free afterwards.  And that is a guarantee they cannot give me.  I hope everything works out for you.