Community Forum

Topic: Surgery and Devices

Created By: usmith | 06/2019 | 0 Comments

Hi!

I was diagnosed with epilepsy at the age of 11 (for 12 years now), and see a need for a product to manage seizures that occur in a public place, i.e. away from care-takers and...

Created By: John Davis | 04/2019 | 0 Comments

Hi I'm almost 21 and have been living with epilepsy since I was 9. I've been an extremely active human being ever since I can remember, I had a VNS (vagus nerve stimulator) put in when I...

Created By: sieeenna19 | 04/2019 | 1 Comment

My epilepsy specialist and my neurologist have both been introducing me to the idea of a vagus nerve simulator since they have a 99% success rate with it. Although they have said I need one yet...

Created By: Jake2 | 04/2019 | 1 Comment

I had an VNS implant carried out in 2010 . But in 2015 I moved to Malta where they don't have VNS implant program and since the battery ran out over a year ago, I have developed severe...

Created By: Strong4Love | 03/2019 | 6 Comments

My boyfriend had a Left Anterior Temporal Lobectomy 2/27/19 for cluster seizures brought on from an untreated TBI. Since then, he has had severe headaches/head pains near surgery site and the...

Created By: Erin1971 | 03/2019 | 0 Comments

Just found these & thought I'd share. Can add info with the full name of implant & says no mri no DIATHERMY.
https://www.americanmedical-id.com/checkout/cart/
...

Created By: Shan71 | 02/2019 | 4 Comments

Hi, I'm trying to get an idea of the surgeon cost for a temporal lobectomy in a private hospital. My health fund covers the hospital.
Going to see him in a couple of weeks but just...

Created By: Erin1971 | 02/2019 | 1 Comment

Not looking for medical advice, as I am calling Dr in morning.
I had my device implanted 1/23/19. Tonight I stretched really big & felt a pop. I waited for it to go off again ( every...

Created By: camryn_dufrene | 02/2019 | 7 Comments

So, I had VNS surgery about a week and a half ago and every time it goes off it feels like my throat is tightening and there is a pain where the nerve is. Does this ever go away or lessen or does...

Created By: JohnD_5c2e38793bd42 | 01/2019 | 11 Comments

Hello. I am 42 years old and i have right temporal lobe epilepsy. I have exhausted all the medication changes that are worth dealing with. Now with only a 5% chance of any medications working,...

Created By: Jenn0030_5968b3e028e9b | 12/2018 | 6 Comments

My doctor has given me 4 options for surgery for intractable epilepsy. Additional resection, I had prior partial TL resection & will not have another as 1 foci is near hippocampus.

...
Created By: Caswagerty | 12/2018 | 2 Comments

I’ve had to do 2 surgeries before and now they’re considering a 3rd. If it doesn’t look good then they’ll do a VNS or RNS. Would a 3rd be too many?

Created By: anminer | 11/2018 | 0 Comments

Hello,

I'm new to this forum and am hoping to get some answers or find someone who has had a similar experience as my family and I are grasping at straws to find out what is wrong with...

Created By: purple_johnny | 11/2018 | 2 Comments

I have Left Temporal Lobe Epilepsy. Heterotopia (or so-called grey matter) is in my left temporal lobe and is where my seizures' emanate from, as well as blocking seizures' precise foci...

Created By: Lisaw_5aba9d9c41991 | 10/2018 | 5 Comments

Good morning everyone, my name is Lisa. I had left temporal lobe surgery 5 weeks ago. I haven’t had any seizures since then thank God but , my doctor said I still can’t bend over and the only...

Created By: Thebeesknees | 10/2018 | 4 Comments

Hi everyone.
I have tonic colonic grand mail seizures. I have them, usually, only every few months. Sometimes more frequently, but sometimes less too...
I have a cavernous angioma in...

Created By: Pattyann3 | 10/2018 | 6 Comments

Our son, 14, was diagnosed with tonic clinic seizures that accure mostly in his sleep. Has anyone tried monitoring devices? We are looking at a few for the Apple Watch that will alert if there is...

Created By: beattybob2 | 10/2018 | 0 Comments

My 42 Y.O. son will be getting cataract surgery under GENERAL ANESTHESIA . He takes seizures and are controlled by medications but could have one at anytime. He has about 15 days a month...

Created By: Jules101 | 09/2018 | 2 Comments

I've Right Temporal Lobe epilepsy, not wanting surgery just now I'm opting for the VNS, but it has left me wonderinding if the RNS maybe the the better one of the two. Can anyone help?...

Created By: Atm823 | 09/2018 | 2 Comments

So I got my vns surgery done on 8/29/18 I was sore and uncomfortable at first but now over this pattern weekend I started getting migraines,blurred vision,and ear pain, and up at all hrs because...

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